Scleroderma Information » Scleroderma » Airports
Question:
Anastasia has just posted her survivor’s story on Scleroderma from A to Z. Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient http://www.sclero.org/support/stories/submissions/anastasia/a-to-z.html "We went everywhere to figure out what she had but no one knew. Traveling to a different hospital finally we heard scleroderma…My question is if she might have had this disease many years ago since she died so fast? Was this just the last stage? It progressed so fast. Are there many cases like this?" If you have any words of comfort or advice for Anastasia, or if you also know what it’s like to have lost a loved one, she would love to hear from you. Warm Hugs, Shelley Ensz, Webmaster Scleroderma from A to Z http://www.sclero.org Now available in 10 languages
Response:
Kate Nance’s website was created to "give voice to other people online that have scleroderma".. The sole purpose of her site is to collect stories from those with scleroderma. Visit it and read from a large assortment of stories at http://www.ihavescleroderma.com Smiles 
Apple Annie ***To reply remove "nospam" from my address*** My favorite scleroderma and arthritis sites are…. http://sclerodermasupport.com http://ihavescleroderma.com http://www.toad.net/~dreichard/ http://arthritisnet.com
Response:
Airports? You mean as to a cause for SD? If that’s the case I can think of maybe a couple…airplane exhaust, the fuel they use, for two. Judy SD World Scleroderma and Other Autoimmune Diseases Email Support List, Message Board , ICQ Chats http://www.sdworld.org Michael Runyon <prec…@webtv.net> wrote in message
news:19757-38134A25-24@storefull-116.iap.bryant.webtv.net… – Hide quoted text — Show quoted text -> I seen where airports are linked to scleroderma.Does anyone know why? > God bless
Response:
Sorry Sorin you are a he not a she. Smiles Apple Annie ***To reply remove "nospam" from my address*** My favorite scleroderma and arthritis sites are…. http://sclerodermasupport.com http://ihavescleroderma.com http://www.toad.net/~dreichard/ http://arthritisnet.com
Response:
Michael, I’ve heard reference to this myself in the past. Do you happen to have any links on the subject to share with this? I’m hard put to say whether it was hard facts I was reading, or just people discussing the possibility. Warm Hugs, Shelley Ensz, Webmaster Scleroderma from A to Z http://www.sclero.org Now available in 10 languages Visit "Scleroderma Sites to Surf!" at http://www.sclero.org/support/swa/a-to-z.html Email: s…@sclero.org Michael Runyon wrote in message
<19757-38134A25…@storefull-116.iap.bryant.webtv.net>… I seen where airports are linked to scleroderma.Does anyone know why? God bless
Response:
Sorin has recently posted her caregiver’s story on Scleroderma from A to Z. Sorin’s cousin has an undiagnosed illness, which may be scleroderma. They live in Romania and are seeking answers to his condition, and are eager to hear from others with input or support. Please see: Sorin, Cousin of Undiagnosed Patient http://www.sclero.org/support/stories/submissions/sorin/a-to-z.html Warm Hugs, Shelley Ensz, Webmaster Scleroderma from A to Z http://www.sclero.org Now available in 10 languages
Response:
>I live about 20 minutes away from Kennedy Airport NY and watch the planes >coming and going all the time. I wonder am I close enough for that to be a >possible cause? >Truthfully it sounds a little far fetched to me. ……Love Gigi
Since we know that at this time there is no proven cause for scleroderma I assume this is just another theory like all the others. Many doctors believe there might be multiple causes of scleroderma. Meaning one person may have got it from an environmental exposure and another may have got it genetically and I’m sure there are other possible links for people. Dr Gotlieb is very active in the arthritis newsgroup. He goes by Dr. Doc. You might want to visit his site and email him and ask him the particulars on this theory. I would be interested in knowing more on this since I have lived near Air Force bases which have large airports for the last 21 years. His link is. http://www.arthritis.co.za/scleroderma.htm Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey
Response:
Yes I read her story on Sherry’s site. Thanks Sorin for sharing your story with us. Smiles Apple Annie ***To reply remove "nospam" from my address*** My favorite scleroderma and arthritis sites are…. http://sclerodermasupport.com http://ihavescleroderma.com http://www.toad.net/~dreichard/ http://arthritisnet.com
Response:
There is some information related to causes of scleroderma on the website of Dr David Gotlieb MBChB FCP(SA), Rheumatologist & Specialist Internal Medicine, from Cape Town, South Africa. His list of possible causes does include living near airports. The link to the scleroderma page of his site is http://www.arthritis.co.za/scleroderma.htm Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey
Response:
<< Subject: Re: Airports From: surviv…@aol.com (Sherry Messick) >> << There is some information related to causes of scleroderma on the website of Dr David Gotlieb MBChB FCP(SA), Rheumatologist & Specialist Internal Medicine, from Cape Town, South Africa. His list of possible causes does include living near airports. The link to the scleroderma page of his site is http://www.arthritis.co.za/scleroderma.htm >> Hi Sherry: I live about 20 minutes away from Kennedy Airport NY and watch the planes coming and going all the time. I wonder am I close enough for that to be a possible cause? Truthfully it sounds a little far fetched to me. ……Love Gigi
Response:
I seen where airports are linked to scleroderma.Does anyone know why? God bless
no comment untill now