Scleroderma Information » Scleroderma » Am I stupid or what?

Question:

Oh Christy, first let me say I hope the pain ends so the tears can end. I can relate to what you wrote so much though. I tend to overdo so much when I am having a good day and then I have three terrible-I-wanna-die days following it. LOL. Let us know how you are doing. You sounded like you were in so much pain when you wrote the letter. I hope the pain has subsided by now. Warm hugs. *** Love, Hugs and well wishes From *** Sherry Messick, Surviving Scleroderma http://SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey – Hide quoted text — Show quoted text – Those of you who know me….shut up! <bg You will not believe what I have done.  OK so most of you will.  I have been really relaxing through the holidays (since about Thanksgiving) and letting kids and hubby help a bunch with cooking, cleaning, etc.  I have had brief bouts where knees hurt from walking too much or back hurts from standing too much or fingers swell, etc. but I am thinking that the Plaquenil (400 mg/day for three weeks) and the prednisone (20 mg/day for about 2 months) and the trazadone (75 mg/day for about 4 months) are really doing the trick and I am starting to feel good.  I took a hot shower this morning which really soothed the muscles and joints and I decided to do some exercises when I got dressed.  That felt good too.  I was a bit stiff from not moving so much before but after doing that, cooking breakfast, going to the grocery store, and putting away groceries, I sat down to rest for about 10 minutes.  Hello….. you still with me?  I could not get up!  Now the pain in my back, hips and legs is so intense, the tears are just streaming down my face and I am frantically trying to take my mind off of things while I wait for the hydrocodone (750 mg) to kick in.  Can we ever win?  Do we have to spend the rest of our lives "resting" to avoid pain?  When do we get "well enough" to really DO something?  UGH!!!!!!! OK…..I feel better already….. thanks for letting me rant (I think this is worse than a whine.) Christy

Response:

Stupid? Yeah! <g I would *never* over do it!!!! LOL….no you are not stupid! You are human!!!! We all want to be "normal"(whatever the hell that means) and do what everyone else does. keep Smilin’ ~krissy Akron, Ohio Visit my web pages at: http://arthritisnet.com http://arthritisnet.com/kids http://members.aol.com/KrissyJo/RA.html

Response:

– Hide quoted text — Show quoted text -Those of you who know me….shut up! <bg You will not believe what I have done.  OK so most of you will.  I have been really relaxing through the holidays (since about Thanksgiving) and letting kids and hubby help a bunch with cooking, cleaning, etc.  I have had brief bouts where knees hurt from walking too much or back hurts from standing too much or fingers swell, etc. but I am thinking that the Plaquenil (400 mg/day for three weeks) and the prednisone (20 mg/day for about 2 months) and the trazadone (75 mg/day for about 4 months) are really doing the trick and I am starting to feel good.  I took a hot shower this morning which really soothed the muscles and joints and I decided to do some exercises when I got dressed.  That felt good too.  I was a bit stiff from not moving so much before but after doing that, cooking breakfast, going to the grocery store, and putting away groceries, I sat down to rest for about 10 minutes.  Hello….. you still with me?  I could not get up!  Now the pain in my back, hips and legs is so intense, the tears are just streaming down my face and I am frantically trying to take my mind off of things while I wait for the hydrocodone (750 mg) to kick in.  Can we ever win?  Do we have to spend the rest of our lives "resting" to avoid pain?  When do we get "well enough" to really DO something?  UGH!!!!!!! OK…..I feel better already….. thanks for letting me rant (I think this is worse than a whine.) Christy

I hear ya Christy,     Ditto here. The week before Christmas my RA was flaring  so I said "screw it" (excuse my French) and took the entire week off from work. The company I am working for really liked that idea!  Anyway, I rested, goofed off, played with the computer, rested, slept, goofed off, whined a bit on this NG, got some encouragement and by the end of the week I was feeling better..thanks to some goofing off and Perdnisone!  Went back to work and bingo, can’t straighten up! Pain in my lower back and hips! I think it is punishment for not going to work in the first place! A pox on this RA stuff! Whine…whine. Nottingham, PA

Response:

Oh Christy    I know exactly where you’re coming from.  We want so much to go and do like "normal folk", and for a while we think we’re doing fine and then this old devil PAIN jumps up and grabs us.  Just wanted you to know–I know–if that helps any.  Hang tough and feel better soon.  Nub

Response:

Hi Christy! I am so sorry for you.  I guess we just can not stand to rest anymore sometimes but what a high price to pay isn’t? We should be able to do both during the same day without any painfull surprises.  You are just a very very normal person. I hope you feel better soon, take care. H

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