Scleroderma Information » Scleroderma » Antibiotic therapy
Question:
Welcome to the Newsgroup. I also have Scleroderma with a various of different problems. I have never been on antibiotic therapy, but last December I had pneumonia and previous to that my lung function tests and other things were all out whack. Needless to say I was admitted to the hospital for the pneumonia and was given antibiotic for it. To make a long story short. In March was my appt. with my doctor who takes care of my Scleroderma-he was amazed everything had changed dramatically for the better-he asked what I had been doing and the only thing that I was doing differently was taking antibiotics to get rid of the pneumonia, and I really believed that is what did it, even though it wasn’t the one you are referring to. My next appointment with him is just around the corner. The first time since dx that I have had a 6 month appt. Doris "Montag" <armad…@polbox.com> wrote in message
news:d9e99f21.0308272303.20a2b872@posting.google.com… – Hide quoted text — Show quoted text -> Was recently told I probably have CREST. > Anyone have any experiences good or bad with antibiotic therapy? > Thank you! > John
Response:
Thanks for the all the info. This is a scary experience and there is a lot to take in at once. Amelia Yaussy <ayau…@forcemail.com> wrote in message <news:opadnUK83YMnkdOiU-KYgw@wideopenwest.com>… > Hi John! I have diffuse and paralelled a study Dr Mayes was doing on > minocycline (wasn’t in the study but took the same dosages.)
How did your doc diagnose Limited (CREST)? I have had Raynauds for several years but more recently have developed joint pain/stiffness, subjective fever, fatigue, petechiae under tongue and esophageal and abdominal symptoms. My internal medicine doctor indicated that I met the criteria for CREST. I am waiting to see a rheumatologist. In the interim I am trying to learn all I can to see what kind of difference I can make with diet/lifestyle and what choice of therapies I may have. Thanks again! John – Hide quoted text — Show quoted text -> Montag wrote: > > Was recently told I probably have CREST. > > Anyone have any experiences good or bad with antibiotic therapy? > > Thank you! > > John
Response:
Hi John! I have diffuse and paralelled a study Dr Mayes was doing on minocycline (wasn’t in the study but took the same dosages.) It cleared up acne and may have cleared up some gut problems but after a year I had to say it didn’t do anything for my scleroderma. Not much study has been done on minocycline for scleroderma, but it did prove to be a mild anti-inflammatory in a rather large test for rheumatoid arthritis. How did your doc diagnose Limited (CREST)? If you’re in the US, call the Scleroderma Foundation at 1-800-722-HOPE or visit www.scleroderma.org to get a free info packet mailed to you. Of course, they’ll send their membership info, but they’ll also send some of their great brochures and booklets, and a copy of the Scleroderma Voice, the quarterly magazine they produce, and it has a LOT of info. – Hide quoted text — Show quoted text -Montag wrote: > Was recently told I probably have CREST. > Anyone have any experiences good or bad with antibiotic therapy? > Thank you! > John
Response:
Was recently told I probably have CREST. Anyone have any experiences good or bad with antibiotic therapy? Thank you! John
Response:
I think it’s a particularly interesting phenomena in scleroderma that, even when presented study evidence that certain medications aren’t significantly more effective than placebo (methotrexate – http://makeashorterlink.com/?N31912623) or large dose vs small dose (D-penicillamine – http://makeashorterlink.com/?I287633C5) that these drugs remain standard treatment. I don’t doubt that people will continue to find antibiotic therapy helpful even if it is shown to make an insignificant difference in studies. So far, there’s not much evidence pro or con – http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=PubMed
no comment untill now