Scleroderma Information » Scleroderma » Coping

Question:

i could not have said it better myself. thank you……………colleen – Hide quoted text — Show quoted text -dayr…@my-dejanews.com wrote: > In article <7bk7gd$…@chronicle.concentric.net>, >   "AC900434" <AC900…@concentric.net> wrote: > > I love classical music, but if I listen to it too much, it makes me really > > introspective, ponderous and morose about my health situation!    In the > > early days of my illness, I  needed to get out a lot of the sadness, so that > > release was good.  Eventually I realized I was stuck in the sadness cycle > > though,  and had to move on. > > Focusing on the lives of my friends who don’t have scleroderma, and being > > there for them when they need help, > > helps me cope.  Making lists of manageable goals and activities that I still > > can do, helps me cope.  Pushing myself to do one more thing than I thought I > > could do,helps me cope.  Learning new things through the internet and > > books,helps me cope (especially on those days when I can hardly get out of > > bed —). > > Every time something is robbed from me with this illness, I try to replace > > it with something else.  For me, the goal of coping is trying to stay > > "whole." > > Hope this doesn’t come across as my thinking I am superior . . . certainly > > far from that!!! > > I honestly believe that there are as many different effective ways of coping > > as there are different types of people and challenges.  The trick is to keep > > trying! > > BRAVO !!!! >   Although the closest that i’ve come to classical music was the oppertunity > to listen to my niece at Little Carnegie in her debut,you’r message is as > inspiring as a beautifully sung Aria. > ———–== Posted via Deja News, The Discussion Network ==———- > http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own

Response:

I like Tchaikovsky, Chopin, Mozart, Grieg, Debussy, Beethoven, Strauss, and I like listening to Enya who is not classic but very relaxing. – Hide quoted text — Show quoted text -Amie Yaussy wrote: > susa…@home.com wrote in message <36DC385D.923CF…@home.com>… > snip > > Somewhere along the road, I rediscovered my love of classical music. > >This is helping me cope and relax also. > > Has anyone else found a method like this to help them cope?  If so, > >what you do to relax?  (19 days to spring)  Susan > Waitin’ for spring, too!  I’ve been lucky to be able to continue running > (I’m not a racer, very slow and sure!)  It’s a "moving meditation" for me > and I think it gives me extra mental benefits – a feeling of acheivement > and the illusion that I have _some_ control over my body (I can push it > along for another mile…)  If I lose running in the future, I’ll apply this > to walking or whatever exercise I can do. > What classical music are you into?  I used to love Vivaldi and find most > Baroque very relaxing and stimulating at the same time.

Response:

AC900434 wrote in message <7bk7gd$…@chronicle.concentric.net>… >I love classical music, but if I listen to it too much, it makes me really >introspective, ponderous and morose about my health situation!    In the >early days of my illness, I  needed to get out a lot of the sadness, so that >release was good.  Eventually I realized I was stuck in the sadness cycle >though,  and had to move on.

I avoid listening to pieces I’ve played (violin) or sung since I can’t do those anymore (sad.)  I’m into piano music right now because I never did master the dang thing! – Hide quoted text — Show quoted text ->Focusing on the lives of my friends who don’t have scleroderma, and being >there for them when they need help, >helps me cope.  Making lists of manageable goals and activities that I still >can do, helps me cope.  Pushing myself to do one more thing than I thought I >could do,helps me cope.  Learning new things through the internet and >books,helps me cope (especially on those days when I can hardly get out of >bed —). >Every time something is robbed from me with this illness, I try to replace >it with something else.  For me, the goal of coping is trying to stay >"whole." >Hope this doesn’t come across as my thinking I am superior . . . certainly >far from that!!! >I honestly believe that there are as many different effective ways of coping >as there are different types of people and challenges.  The trick is to keep >trying!

Beautifully said!

Response:

I love classical music, but if I listen to it too much, it makes me really introspective, ponderous and morose about my health situation!    In the early days of my illness, I  needed to get out a lot of the sadness, so that release was good.  Eventually I realized I was stuck in the sadness cycle though,  and had to move on. Focusing on the lives of my friends who don’t have scleroderma, and being there for them when they need help, helps me cope.  Making lists of manageable goals and activities that I still can do, helps me cope.  Pushing myself to do one more thing than I thought I could do,helps me cope.  Learning new things through the internet and books,helps me cope (especially on those days when I can hardly get out of bed —). Every time something is robbed from me with this illness, I try to replace it with something else.  For me, the goal of coping is trying to stay "whole." Hope this doesn’t come across as my thinking I am superior . . . certainly far from that!!! I honestly believe that there are as many different effective ways of coping as there are different types of people and challenges.  The trick is to keep trying!

Response:

This last year has been very difficult for me with new, painful, disabling symptoms, new medication with serious side  effects.  My brother died suddenly during this time with all the resulting funeral preparation, paper work, things to dispose of.  Our oldest cat took sick  and eventually we had to put him down.  (Our cats are our babies, so this was painful too).           Somewhere along the road, I rediscovered my love of classical music. This is helping me cope and relax also.           Has anyone else found a method like this to help them cope?  If so, what you do to relax?  (19 days to spring)  Susan

Response:

I am sorry Susan to hear of your losses. I also lost a brother suddenly in May 98 so I can relate. For me I have found my online activities a good resource for coping. I enjoy doing the webpages and researching online. I also love to read and play cards so those are relaxing to me and take my mind off of things. Many people like to garden. I would love to hear from others also as to what you do to relax. We Are Raising Awareness of Scleroderma Providing Support, Information and News Sherry Messick, Surviving Scleroderma http://SclerodermaSupport.com Scleroderma Foundation Greater Washington DC http://sclerodermagw.org "Together we can beat the odds!" susa…@home.com wrote: > This last year has been very difficult for me with new, painful, > disabling symptoms, new medication with serious side  effects.  My > brother died suddenly during this time with all the resulting funeral > preparation, paper work, things to dispose of.  Our oldest cat took > sick  and eventually we had to put him down.  (Our cats are our babies, > so this was painful too). >         Somewhere along the road, I rediscovered my love of classical music. > This is helping me cope and relax also. >         Has anyone else found a method like this to help them cope?  If so, > what you do to relax?  (19 days to spring)  Susan

Response:

I, too, rediscovered my love for classical music. I think my favorite is Smetana’s Moldau. Now if I could just find the darned tape again! Why do I keep misplacing things? Also I love my garden, and just being outside! I’m on 2 gardening email lists that I love. Also the dogs are a big help, just to talk to or to pet. Solitaire on the computer can be mind numbing when I need that effect! LOLs! Jo NJ

Response:

In article <7bk7gd$…@chronicle.concentric.net>,   "AC900434" <AC900…@concentric.net> wrote: – Hide quoted text — Show quoted text -> I love classical music, but if I listen to it too much, it makes me really > introspective, ponderous and morose about my health situation!    In the > early days of my illness, I  needed to get out a lot of the sadness, so that > release was good.  Eventually I realized I was stuck in the sadness cycle > though,  and had to move on. > Focusing on the lives of my friends who don’t have scleroderma, and being > there for them when they need help, > helps me cope.  Making lists of manageable goals and activities that I still > can do, helps me cope.  Pushing myself to do one more thing than I thought I > could do,helps me cope.  Learning new things through the internet and > books,helps me cope (especially on those days when I can hardly get out of > bed —). > Every time something is robbed from me with this illness, I try to replace > it with something else.  For me, the goal of coping is trying to stay > "whole." > Hope this doesn’t come across as my thinking I am superior . . . certainly > far from that!!! > I honestly believe that there are as many different effective ways of coping > as there are different types of people and challenges.  The trick is to keep > trying! > BRAVO !!!!

  Although the closest that i’ve come to classical music was the oppertunity to listen to my niece at Little Carnegie in her debut,you’r message is as inspiring as a beautifully sung Aria. ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own    

Response:

>This last year has been very difficult for me with new, painful, >disabling symptoms, new medication with serious side  effects.  My >brother died suddenly during this time with all the resulting funeral >preparation, paper work, things to dispose of.  Our oldest cat took >sick  and eventually we had to put him down.  (Our cats are our babies, >so this was painful too).   >    Somewhere along the road, I rediscovered my love of classical music. >This is helping me cope and relax also.   >    Has anyone else found a method like this to help them cope?  If so, >what you do to relax?  (19 days to spring)  Susan

Sorry to hear you’ve been having such a rough time.  Seems that bad news comes in bundles! Music certainly can be relaxing and uplifting.  I love listening to Barbra Streisand, whose music has brought me solace and happiness since I became "hooked" at 12.  Massage therapy also is very relaxing.  And, yes, Spring is wonderful too.  Going for a ride, lazing on a hammock, taking a walk among gardens, etc. all are terrific pursuits during  the warm, bright days. -Ronni- *********************************** Building Awareness for Scleroderma Is Crucial to Finding a Cure Scleroderma Foundation (1/800-722-HOPE)

Response:

susa…@home.com wrote in message <36DC385D.923CF…@home.com>…

snip > Somewhere along the road, I rediscovered my love of classical music. >This is helping me cope and relax also. > Has anyone else found a method like this to help them cope?  If so, >what you do to relax?  (19 days to spring)  Susan

Waitin’ for spring, too!  I’ve been lucky to be able to continue running (I’m not a racer, very slow and sure!)  It’s a "moving meditation" for me and I think it gives me extra mental benefits – a feeling of acheivement and the illusion that I have _some_ control over my body (I can push it along for another mile…)  If I lose running in the future, I’ll apply this to walking or whatever exercise I can do. What classical music are you into?  I used to love Vivaldi and find most Baroque very relaxing and stimulating at the same time.

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