Scleroderma Information » Scleroderma » Dressing for cold weather
Question:
- Hide quoted text — Show quoted text -Amie Yaussy wrote: > Metronym wrote in message <19981103200102.19355.00003…@ng05.aol.com>… > >What a rotten way to go to lunch! Handled a fork lately??? 
> LOL! Yes, and dropped many! > snipped > >I live in a climate, as do you, that really is totally inhospitable to > > human form (but it is so beautiful in the summer …). Summer Raynaud’s > > is one thing, but Winter Raynaud’s starts for me at 55 degrees for sure. > > We are down to 40 and I am doing pretty well (as long as I don’t go > > outside with long (okay …. 5 minutes) exposure ???? I suspect it is > > the Adalat CC. Any thoughts on this? > I know I have "milder" (purely subjective observation, here) attacks when I > take my Cardizem like I’m supposed to… uh, that was the other thing I did > yesterday – forgot the morning dose 
> > I can actually approach a cold chalk board and still feel the chalk. This > > is big for me. I have 6,000 packets of hand warmers, just in case. (I > > always carry one pair with me. You should too Amie.) BUT, I have gone > > through very few so far … It’s not gone, but it isn’t visciously > > atttacking me unaware. I wanna’ know what I am doing right, so that I > > keep on doing it! > You are so right – I’ll dig out my supply tonight.
I guess I have to admit that my substitute for carrying around a cat everywhere I go is to get a nice Muff. I would imaging that a lining can be put inside to handle the hot packs. My right hand and wrist, esp., gets colder than the left. Does anyone else get this? –Jaimes
Response:
I like Isotoner gloves with the Thinsulate lining. I was surprised when my doctor recommended them to me for Raynaud’s, because they’re thin, but I do find them warm and useful for weather that’s not brutally cold. The problem with many other gloves and mittens is that they’re too bulky and cumbersome. If I have to take them off to get my keys from my pocket or unlock my car door, it defeats the whole purpose. I use the thick gloves with batteries and/or warm packs for when I’m out in the cold for long periods of time. For everyday use, I use the Isotoners. There’s certainly a market for a glove manufacturer to produce a warmer glove that allows for flexibility. They’re missing out on a huge market (considering that an estimated 5% of the population has Raynaud’s phenomenon). Ronni
Response:
Hammacher Schlemmer (I’m getting better at spelling it!) has a web site at www.hammacher.com. Their entire catalog is online. Customer service # 1-800-227-3528 They also have a double heated, carry along, sports seat, provides 8 hours of warmth, with thermal packs that are heated in the micro. Price #39.95. (Hmmmm, seems to be a popular price for them.) Jo
Response:
Sorry winter in Ohio caught up with you. I always carry my warmest gloves in the trunk of the car… and in the winter time, I had a pair of very heavy Navy winter "flight deck" overalls which are super warm. I hate the thought of a break down on the highway and waiting (or walking) for help with the Raynaud’s… I have the smallest trunk around but I make it a point to carry "the essential" stuff to stay warm in the summer. Re: Sir Laffsalot cat’s – great idea… wonder if we could get them qualified as a "assistance animal" so we could carry them into restaurants. Imagine the furrow! Re: Raynaud’s more in one hand than the other… yep.. that’s me. My right hand will always go first. Specifically, my ring finger, then my index finger….. and about that time the left hand will join in. Weird… I’ve never thought about it before.
Response:
> I got a catalog in yesterday’s mail from….Heaven help me with the > spelling!…Hammacher Schlemmer…there! I did it!. > Anyway, they have gloves & mittens on p. 83, that keep hands warm up to 5 > hours with one D battery each. > They are a gauntlet style so it comes up over jacket sleeves. Also a > removable liner. Cost $39.95. > Just wanted to pass this on.
Is there an 800 customer service number where others could call to be added onto their mailing list? — *** Love, Hugs and well wishes From *** Sherry Messick, Visit My Site! Surviving Scleroderma http://www.SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can!
Response:
Amie, What a rotten way to go to lunch! Handled a fork lately??? Even in the summer, restaurants can have a breeze from the air conditioning or fan, and there goes the finger power. Add to that a cold beverage (I am soooo tired of ordering hot tea) and wooden fingers doth make a nonresponsive hand! Our youngest son plays football and hockey … sports seasons are murder, but I just love to see him play. The only thing I have found to date that helps is 1) being in Houston for a conference and going outside where no creature can abide ….aaaah … warm hands! and 2) finding your nearest hot water faucet and hogging the sink between periods (quarters). You are right. It is so important to not misjudge the weather. It really hurts us to make that mistake. And if one more person asks "What happened to your fingers?" I think I will respond "I am the near dead. Speak to me softly and don’t make any sudden movements. I upset easily." haha I was put on a very large dose of nifedepine (ex. Procardia XL or Adalat CC) last August. I have coronary vascular involvement (i.e. arterial insufficiency to the heart). Of course that and the addition of nitroglycerin patches make all the difference. I now rarely suffer repetitively from angina. (Yes! Good, good, good! Have a party. Do a dance. I like it, like it, wanna do the boogie?) Ahem. I lost myself for a moment ….. I live in a climate, as do you, that really is totally inhospitable to human form (but it is so beautiful in the summer …). Summer Raynaud’s is one thing, but Winter Raynaud’s starts for me at 55 degrees for sure. We are down to 40 and I am doing pretty well (as long as I don’t go outside with long (okay … 5 minutes) exposure ???? I suspect it is the Adalat CC. Any thoughts on this? I can actually approach a cold chalk board and still feel the chalk. This is big for me. I have 6,000 packets of hand warmers, just in case. (I always carry one pair with me. You should too Amie.) BUT, I have gone through very few so far … It’s not gone, but it isn’t visciously atttacking me unaware. I wanna’ know what I am doing right, so that I keep on doing it! "Can’t wait for reflections from this newsgroup. Metronym
Response:
I haven’t decided which is worse for me. Outdoors in the winter or indoors in the summer. I freeze to death in most restaurants and get raynaud spasms so bad my hands are to numb to manipulate the silverware to eat, LOl, and I won’t Even go into discussing the winter months — *** Love, Hugs and well wishes From *** Sherry Messick, Visit My Site! Surviving Scleroderma http://www.SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can!
Response:
LJL writes: >Price #39.95.
(Hmmmm, seems to be a popular price for them.)> haha I think, if they sold bubble gum, it would be $39.95! Thanks for the info. I think a warm "seat" sounds divine for hockey season. I may never stand up again! Metronym
Response:
The big gloves are a problem in that you can not dig a set of keys out of a pocket or pocketbook… but when leaving the warmth indoors for the car (or the warmth in the car to get in the house), I always (ALWAYS) put the keys in my glove before going outside. They say this is a good practice since if you carry it right, it becomes a weapon against attackers. Quite frankly, I don’t think anybody with a Saturday night special or switch blade will be very impressed at my key sticking out of my gloves! – Hide quoted text — Show quoted text ->If I have to take them off to get my keys from my pocket or unlock my car door, >it defeats the whole purpose. >Ronni
Response:
I was caught off guard today and went out at lunch with gloves that were too light. That blast of chilly air screaming across the parking lot gave me an instant Raynaud’s attack that lasted halfway through lunch, and now I’ve got that achy after-affect. Fortunately, I was near a place where I could purchase some mittens to go over the gloves for the return trip. Don’t be like me! Don’t underdress! This is really, really important to those who are newbies and might be experiencing their first winter with Raynaud’s this year. — Amie ——– I Have Scleroderma http://members.tripod.com/~ayaussy/ The trouble with life is, you’re half way through it before you realize it’s a "do it yourself" thing.
Response:
Everyone has to find what works for them… In BS times (Before Scleroderma), the thinsulite Isotoners were among my favorites… But now I don’t feel like the do a darn thing! Sherry Messick wrote in message
<3641CA33.3C191…@sclerodermasupport.com>… – Hide quoted text — Show quoted text ->The isotoners even with the lining did nothing for me even in the >warmest of winter days.
Response:
I got a catalog in yesterday’s mail from….Heaven help me with the spelling!…Hammacher Schlemmer…there! I did it!. Anyway, they have gloves & mittens on p. 83, that keep hands warm up to 5 hours with one D battery each. They are a gauntlet style so it comes up over jacket sleeves. Also a removable liner. Cost $39.95. Just wanted to pass this on. Jo
Response:
Metronym wrote in message <19981103200102.19355.00003…@ng05.aol.com>… >What a rotten way to go to lunch! Handled a fork lately???
LOL! Yes, and dropped many! snipped >I live in a climate, as do you, that really is totally inhospitable to human >form (but it is so beautiful in the summer …). Summer Raynaud’s is one thing, >but Winter Raynaud’s starts for me at 55 degrees for sure. We are down to 40 >and I am doing pretty well (as long as I don’t go outside with long (okay …. 5 >minutes) exposure ???? I suspect it is the Adalat CC. Any thoughts on this?
I know I have "milder" (purely subjective observation, here) attacks when I take my Cardizem like I’m supposed to… uh, that was the other thing I did yesterday – forgot the morning dose >I can actually approach a cold chalk board and still feel the chalk. This is >big for me. I have 6,000 packets of hand warmers, just in case. (I always carry >one pair with me. You should too Amie.) BUT, I have gone through very few so >far … It’s not gone, but it isn’t visciously atttacking me unaware. I wanna’ >know what I am doing right, so that I keep on doing it!
You are so right – I’ll dig out my supply tonight.
Response:
Yup my left hand always goes first and then my right hand finger by finger. I had never thought of that either. Now my theory on that is that myleft hand (non-dominant hand) gets less movement and sits there spending all its time calling to the cold in the air come get me I turn blue .!! — Eileen McDermott, CA If you see someone without a smile give them one of yours ! LISA L GLOVER wrote in message
<71qul5$2gs…@newssvr04-int.news.prodigy.com>… – Hide quoted text — Show quoted text ->Sorry winter in Ohio caught up with you. >I always carry my warmest gloves in the trunk of the car… and in the >winter time, I had a pair of very heavy Navy winter "flight deck" overalls >which are super warm. I hate the thought of a break down on the highway and >waiting (or walking) for help with the Raynaud’s… I have the smallest >trunk around but I make it a point to carry "the essential" stuff to stay >warm in the summer. >Re: Sir Laffsalot cat’s – great idea… wonder if we could get them >qualified as a "assistance animal" so we could carry them into restaurants. >Imagine the furrow! >Re: Raynaud’s more in one hand than the other… yep.. that’s me. My right >hand will always go first. Specifically, my ring finger, then my index >finger….. and about that time the left hand will join in. Weird… I’ve >never thought about it before.
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Response:
- Hide quoted text — Show quoted text -> I like Isotoner gloves with the Thinsulate lining. I was surprised when my > doctor recommended them to me for Raynaud’s, because they’re thin, but I do > find them warm and useful for weather that’s not brutally cold. The problem > with many other gloves and mittens is that they’re too bulky and cumbersome. > If I have to take them off to get my keys from my pocket or unlock my car > door, > it defeats the whole purpose. > I use the thick gloves with batteries and/or warm packs for when I’m out in > the > cold for long periods of time. For everyday use, I use the Isotoners. > There’s > certainly a market for a glove manufacturer to produce a warmer glove that > allows for flexibility. They’re missing out on a huge market (considering > that > an estimated 5% of the population has Raynaud’s phenomenon).
The isotoners even with the lining did nothing for me even in the warmest of winter days. I have had about 10 pairs of gloves or mittens trying to find a pair that helped. I finally found a pair at Wal-mart that really helped. I suggest going to Wal-mart since they have a large selection and just trying on pair after pair till you find one that feels right. Then buy it wear it for a day and if you don’t feel they are helpful then return them and try another pair. "Customer satisfaction" LOL. — *** Love, Hugs and well wishes From *** Sherry Messick, Visit My Site! Surviving Scleroderma http://www.SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can!
Response:
Great site. Joanna! Thanks so much for sharing that with us. – Hide quoted text — Show quoted text ->Metronym
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