Scleroderma Information » Scleroderma » Ed Reiss Post 8/7
Question:
It’s all a matter of perspective in the end. When I was diagnosed with pustular psoriasis, I was on a real pity party. Then I started noticing other things that weren’t right and after extensive testing, was diagnosed with Scleroderma (CREST variant). That put psoriasis down the list for things to cry about. It’s painful and frustrating, but so far not going to kill me. Also, I have much sympathy for all of you who have so much coverage on your bodies with the placque psoriasis. At least I can put shoes (if I can stand them) on mine and keep it out of sight. Bless all of us in our mutual struggle. — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.
Response:
Everyone has different abilitites to handle adversity. He reminded us that we have this disease to varying degrees and as unique individuals, we have a large range of emotional capabilities in dealing with our illness.
Thanks Ava. That was the main point I was trying to make, and I think you just stated it more clearly (and comcisely) than I did. Regards, Ed
Response:
I read Ed’s very eloquent post this morning and have been thinking about it ever since. I think his post stated beautifully a point of view that I had selfishly not taken into account. Everyone has different abilitites to handle adversity. He reminded us that we have this disease to varying degrees and as unique individuals, we have a large range of emotional capabilities in dealing with our illness. For example, someone with more severe illness, like me (8 chronic diseases and counting!) and who is my age, 51, may have developed "thicker skin" (can’t seem to resist that pun!) than others. Young people have much more difficulty with this emotionally because surviving adolecence is already an awesome challenge, especially if you are, shall we say "cosmetically impaired." The different kinds of "P" also is something to consider. Thank you Ed for reminding me not to preach but to support. I still advocate "counting your blessings" as a coping mechanism, and I hope that others are able to use it. But future postings of mine will take into account the differences among us. Ava
Response:
I have p for 3-4 months now (on my feet) and I must say that on the first two months I have experienced different levels of depression and frustration. I remember that the first thing I said to myself was – "thank god I am married", cause I couldn’t believe that someone would like to be with me while I have such disease. but today, when I have learned much more about it and after I saw that people are not so shocked about it, I am much more relaxed. I think it is one of the things you must do (to relax) in order to get better. I am not better yet, but I am very happy to find this group and to learn much more things then I heard from my helpless doctor. I think this is the time to visit a nutrition and to go on that carb diet. be happy, Ori. – Hide quoted text — Show quoted text – I read Ed’s very eloquent post this morning and have been thinking about it ever since. I think his post stated beautifully a point of view that I had selfishly not taken into account. Everyone has different abilitites to handle adversity. He reminded us that we have this disease to varying degrees and as unique individuals, we have a large range of emotional capabilities in dealing with our illness. For example, someone with more severe illness, like me (8 chronic diseases and counting!) and who is my age, 51, may have developed "thicker skin" (can’t seem to resist that pun!) than others. Young people have much more difficulty with this emotionally because surviving adolecence is already an awesome challenge, especially if you are, shall we say "cosmetically impaired." The different kinds of "P" also is something to consider. Thank you Ed for reminding me not to preach but to support. I still advocate "counting your blessings" as a coping mechanism, and I hope that others are able to use it. But future postings of mine will take into account the differences among us. Ava
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