Scleroderma Information » Scleroderma » English family
Question:
Hi,
Response:
Naomi, I am so sorry to hear that you are not doing well. We will keep sending postive thoughts and prayers your way. Welcome back. – Hide quoted text — Show quoted text -N1Turtle wrote: > Hello everyone, > I’ve been around and I know Josie is fine as I just got a letter from her. I’ve > been really poorly. They have found something wrong with my liver and I’m going > to see a specialist, soon I hope. I wonder if it’s connected to all the other > symptoms. I always thought our livers were safe. Any one else suffer?I hope > everyone is ok. I’m sending love to you all from both Josie and me. Love Naomi
Response:
You can have liver involvement. It isn’t a safe organ. Anything you get will be subclinical at first-the symptoms show up only in blood work. If you are on cholestorol drugs they will pick it up in those blood tests. Nancy
Response:
Where are our ladies from England? Lady J, Naomi?
Response:
Hello everyone, I’ve been around and I know Josie is fine as I just got a letter from her. I’ve been really poorly. They have found something wrong with my liver and I’m going to see a specialist, soon I hope. I wonder if it’s connected to all the other symptoms. I always thought our livers were safe. Any one else suffer?I hope everyone is ok. I’m sending love to you all from both Josie and me. Love Naomi
Response:
Thinking of you? No, I miss you. I am glad you are back on line and hope to see more postings from you. How is your family? 4 legged kids? Take care of yourself as you dont need a high BP to create other problems healthwise for you. Have you and Naomi met in person yet? – Hide quoted text — Show quoted text -JosieM wrote: > I’m here, Colleen. Thanks for thinking of me. I think about all of you > often. I just got back online today. I’m well and catching up on all the > news. I’ve missed reading all the postings and everyone here. > My news is that one year on from my first positive SCL70 test, I have an > appointment at Prof.C.Black’s Scleroderma Specialist Centre in London on the > 21st October. I can’t believe it, and I’m busy preparing my file. My > doctors think I’m paranoid, but I don’t care – scleroderma or not, I’m > getting checked out in the right place now. It was a long hard fight and > I’ve been totally exhausted since receiving my appointment. My BP is > steadily 160/95 – too high for my liking. Still on bendrofluozide for this. > It used to be 120/80. I have proven esophogal problems which my rheumy says > are not connected to scleroderma – something to do with the wave pattern. > But I’m not told what they are connected to. Swollen ankles, split fingers, > aching joints – I’m falling apart at the seams. > Anyway that’s it until the end of October. Hope everyone is managing okay > with the sd and looking after yourselves. There’s a long winter ahead of > us, so boost up now with good food, warm socks and thermal vests. > I’d love to hear from you all. Love & Best Wishes Josie (aka LadyJ) from > England only 20 miles from Naomi and still sending email to her. > Richard Schiehl wrote in message <37E7B279.F4E66…@gulftel.com>… > >Where are our ladies from England? Lady J, Naomi?
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