Scleroderma Information » Scleroderma » Few interesting items
Question:
- Hide quoted text — Show quoted text ->Re: Few interesting items >From: <Mi…@aol.com> >Date: Sat, May 2, 1998 21:58 EDT >Message-id: <6igj0a$bo…@newsfep4.sprintmail.com> >Nancy, >ShugiPP is Deanboar’s new screen name. >Mia >User115827 wrote in message ><1998042815284200.LAA24…@ladder01.news.aol.com>… >>There is more than one individual. It takes more than one to carry on a >battle. >>Deanboar’s Scleroderma Angles would like you to believe there is only one >>person talking to herself. >>Nancy ></PRE></HTML>
Please, lets not get into whose name has changed, and so what. I have other names that I also use. What’s the big deal here? This is a board for everyone. Lets not be nit picky Mia………what is your point? Please spell out your disapproval of using different names. Everyone uses names other than the 1st one you observed. What’s your beef???????????? Please explain to all of us, so we can understand where you are coming from and where you are heading with your statements. No one can figure out what you are trying to accomplish and why. Enlighten us….PLEASE. And I for one have no idea who Shug is and it doesn’t matter. We are all here to support and share information. Are you MIA using more than one name and occassionaly patting yourself on the back (using another name with a positive post to your liking?) This is so childish…guess some people have no life, or friends so visit various groups trying to stir up trouble. We don’t need this on here and will not post to your ignorent statements, unless it re: medicine, diseases, etc.
Response:
Thank you Leanne, That site is a gold mine filled with nuggets of great items to read and explore. Thank you for sharing the link with me. When I visited the page there for other sites I was astonished to find there are so many places online about sclerodarma. I did a search this morning and came up with a list that I hadn’t found time to visit. I got back on tonight to try and go to some of the links the search engine had captured for me. The newsgroup was my first click and it took me an hour to try and sort through the bad to find the good. I found another site from the link you shared which had a lot of personal stories on it. I am getting thick skin fairly at a fast rate. I would appreciate anyone emailing me or responding here to me with anything you care to share in relevence. I am new and have a lot to learn I see. Shurman
Response:
Hi Everyone, I have been meaning to share some new items that have been sent my way or I have come across with everyone here but I just keep getting behind with my intentions 
Below are some interesting tidbits of info or links that people have sent me that I feel others visiting here might wish to visit and read as well. BTW Let’s thank Ed Harris for his superb revised version of Scleroderma FAQ. http://www.synnovation.com/sclerodermafaq.html Do coping strategies predict positive and negative effect in SD patients http://www2.uchc.edu/~vazquez/coping.html Shelly Ensz has constructed a "What is Scleroderma" site that is very informative. http://www2.pro-ns.net/~sensz/a-whatis.htm This is a great page to send people to that ask you that question that we find so hard to answer. "Sclero what?" Understanding Scleroderma, by Dolores V
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