Scleroderma Information » Scleroderma » For Christmas…
Question:
A 12v car heater so you can have heat as soon as you start the car rather than waiting for it to warm up. Write down 144 things you love about your dad and give him 12 a day for 12 days…. A membership in the Scleroderma Foundation ($25/yr, 1-800-722-Hope) A membership in the Arthritis Foundation, (local offices all around) An electric mattress pad if he seems "colder than he used to be". A parafin wax bath machine for his hands (kinda expensive but we’re brainstorming here) Oh shoot… might as well add a hot tub or spa while I’m dreaming. Write down 12 significant things your Dad taught you and give him one a day for 12 days…. Buy 12 bottles of lotion to let him try different kinds (Udder balm, Udder cream, Eucrein, Saran, etc.) The emergency kit for the car is a great idea. It’s hard to know what kind of gloves to reccommend… we are all different in what we like… I like the fuzzy polar fleece gloves (London Fog outlet stores) for light days… and the Early Winters Heat Flow for days I need a heat pack… and I hate those isotoners NOW… use to wear them all the time. Your Dad will appreciate the chance to try different ones even if he doesn’t like the ones you picked. Web TV so he can surf the net (if he’s not on the net)… we still dreaming here…. A magazine subscription to Island Living… so he can look at the tropics as the snow flurries abound….. Arrange for someone else to shovel his walk/drive! OK…. I’m brain dead! Good luck!
Response:
Hello Everyone. I introduced myself previously, my father was recently diagnosed with the CREST version of scleroderma which messed with his lungs and caused heart failure. Well we get very cold winters around here and I wanted to give him a basket full of stuff and an emergency kit for his car (with extra gloves, a hat, blanket, etc..) should he ever be stranded somewhere. I’d like to hear from you what the most useful or helpful things are that you have to make yourselves more comfortable. Such as a specific kind of cream to put on your hands, what kind of gloves, the best kind of chocolate…anything you can think of that really comforts you. I’d really appreciate it, maybe I’ll make it like the 12 Days of Christmas and give him something every day! Thanks in advance, and thanks for being here, Amy
Response:
>Just as a side note, I couldn’t read the response posted by >NOSPAMcott…@lmi.net, AOL wouldn’t let me download it. Can I fix this?
I had the same problem and contacted AOL about this just last week. I followed the instructions in the response I received and the problem is now solved. <<By default, there are NO controls set on any sub-account screen name, except for BINARY downloads (see below). Parental Controls require proactive setting by the Master Account screen name. So, you have complete access UNLESS you have set controls yourself or someone else has set them from the Master Account screen name. The ONE feature that is blocked by default on all screen names is the Newsgroups Binary Downloads. To unblock this feature: 1. Sign onto the Master Account screen name go to Keyword: NEWSGROUPS. 2. Click on the PARENTAL CONTROLS button at the bottom of the main Newsgroups screen. 3. When you get to the screen with name(s) on it, click the name for which you wish to remove the Binary Block, then clear the check mark at BLOCK BINARY DOWNLOADS. Click SAVE to save your changes.>> Terri "Growing old is inevitable, growing up is optional"
Response:
This is a fabulous idea. I suggest Interstol warm packs, 800 636 4447, inters…@aol.com, These hot pads are great to have in your car, you shake them and then they are warm. Personally I like Isotoner gloves or the ones that I had made for me out of lycra, spandex. They allow the most flexibility for driving. For outdoor gloves should be much warmer. I am a Ghiradelli fan myself but that’s cuz my Grandpa worked for them when I was growing up so I always had Ghiradelli bars to give out for Halloween. You might include a scarf, hat, warm socks or sliippers. Your dad is lucky. — Eileen McDermott, CA If you see someone without a smile give them one of yours 
! – Hide quoted text — Show quoted text -Amylbrooks wrote in message <19981114110414.17992.00001…@ng62.aol.com>… >Hello Everyone. I introduced myself previously, my father was recently >diagnosed with the CREST version of scleroderma which messed with his lungs and >caused heart failure. >Well we get very cold winters around here and I wanted to give him a basket >full of stuff and an emergency kit for his car (with extra gloves, a hat, >blanket, etc..) should he ever be stranded somewhere. I’d like to hear from >you what the most useful or helpful things are that you have to make yourselves >more comfortable. Such as a specific kind of cream to put on your hands, what >kind of gloves, the best kind of chocolate…anything you can think of that >really comforts you. I’d really appreciate it, maybe I’ll make it like the 12 >Days of Christmas and give him something every day! >Thanks in advance, and thanks for being here, >Amy
begin 666 E. McDermott.vcf M0D5′24XZ5D-!4D0-"E9%4E-)3TXZ,BXQ#0I..DUC1&5R;6]T=#M%+@T*1DXZ M12X@36-$97)M;W1T#0I%34%)3#M04D5&.TE.5$523D54.D923U=.8V]T=&%G L94!L;6DN;F5T#0I2158Z,3DY.#$Q,314,C(Q,#0S6@T*14Y$.E9#05)$#0H` ` end
Response:
What a great idea. One note: Not sure if your Dad has Raynaud’s — I do, and chocolate, tea and coffee make it noticeably worse . . . therefore, if the chocolate is for the "stranded car pack" you might want to choose another high energy item (nuts, gumdrops, etc.). My Raynaud’s is pretty bad, though; I have heard there are people for whom this is not the case (and I am JEALOUS!). Just a thought, anyway. Those little heat packet things E. McDermott was talking about are great — you can also get them (or similar products) in the hunting department of a KMart or Wal-Mart. Battery-operated socks are also available, there, too. Actually just walking down the hunting section of any sporting goods store would probably give you lots of great ideas. Another place to check at this time of year would be a motorcycle accessories store — they have terrific products to keep bikers warm . . . special gloves and face gear, etc. So, now we have you heading off to hunting and motorcycle places — this image has appeared in my head of your grey-haired dad, waiting for AAA in camouflage, biker regalia, and battery operated socks (while eating gumdrops). LOL . . . sorry you asked????? AC Amylbrooks wrote in message <19981114110414.17992.00001…@ng62.aol.com>… >I’d like to hear from you what the most useful or helpful things are that
you have to make yourselves – Hide quoted text — Show quoted text ->more comfortable. Such as a specific kind of cream to put on your hands, what >kind of gloves, the best kind of chocolate…anything you can think of that >really comforts you. I’d really appreciate it, maybe I’ll make it like the 12 >Days of Christmas and give him something every day! >Thanks in advance, and thanks for being here, >Amy
Response:
Terri– Thanks for the clear instructions on unblocking binary downloads, it worked! Does this mean I can now get naughty pictures? Woohoo! Amy
Response:
Oh yes, just a thanks to all of you who took the time to post. Thanks a lot. Amy
Response:
Thanks for the suggestions! I won’t be able to afford all of them due to those pesky tuition bills coming up but I can pick through. Thanks for the info on chocolate not going well with Reynaud’s, my dad does have that. Just as a side note, I couldn’t read the response posted by NOSPAMcott…@lmi.net, AOL wouldn’t let me download it. Can I fix this? Thanks, Amy
Response:
My Doctor recommended using Neosporin Plus with pain reliever. It helped better then anything I had used. Now if the ulcer is too bad your doctor may wish to start you on a cycle of antibiotics to help it heal. I also soaked it a lot. I used just soapy water to soak it and made sure the water was as warm as I could stand it. That worked as well as anything and is actually what my doctor first recommended instead of using soaking solutions. Here is a link to some ideas for treatment of ulcers. http://www.SclerodermaSupport.com/med-raynauds.html#ray-fingerulcers I hope it helps. Perhaps you could take this information to your physician and see what he/she thinks would be best for your situation. Barbara Emmott wrote: > Raynauds / Circulation /Ulcers > I have Crest syndrome. My Raynauds disease seems to get worse in the > winter. Right now I > have venous stasis n the leg, so the circulation to the legs is poor, > resulting in 2 ulcers on my foot that simply does not heal. I’ve had > these for months. Going to a wound care specialist, but this isn’t > helping. I’ve tried sugar and vitamin e applied to the wound, but there > was not much difference than the bacitracin I was using. I have also > used zinc oxide. I need HELP. Can anyone offer me any suggestions ? The > wounds are on my foot in s terrible place where the foot bends. Wearing > shoes is painful. And do these things itch. I’m sendingout an SOS > !!!!!!!!!
– *** Love, Hugs and well wishes From *** Sherry Messick, Visit My Site! Surviving Scleroderma http://www.SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can!
Response:
Raynauds / Circulation /Ulcers I have Crest syndrome. My Raynauds disease seems to get worse in the winter. Right now I have venous stasis n the leg, so the circulation to the legs is poor, resulting in 2 ulcers on my foot that simply does not heal. I’ve had these for months. Going to a wound care specialist, but this isn’t helping. I’ve tried sugar and vitamin e applied to the wound, but there was not much difference than the bacitracin I was using. I have also used zinc oxide. I need HELP. Can anyone offer me any suggestions ? The wounds are on my foot in s terrible place where the foot bends. Wearing shoes is painful. And do these things itch. I’m sendingout an SOS !!!!!!!!!
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