Scleroderma Information » Scleroderma » Help
Question:
I was on it for 3 years and it didn’t help me at all. I have heard from others that it did help them though. Good luck with this. Syl "OGDENBX" <ogde…@aol.com> wrote in message
news:20010611192626.03320.00000530@nso-ca.aol.com… – Hide quoted text — Show quoted text -> HI > I have been diagnosed with Pulmonary Hypertension, Scleroderma , Raynauds and > Primary Biliary Cirrhosis. I was first dignosed with the Primary Biliary > Cirrhosis in 1989, then the Scleroderma and the Pulmonary Hypertension starting > a year and 1/2 ago. I has been getting worse and I am going to be catherized > soon and then given a Flolan Pump .Has anone been on the Flolan pump and did it > help. I am getting nervous and hope that I have made the right decision and > that it will work. It’s been a long time getting to this point and now I > worry. > HELP > DUCHESS
Response:
Du(t)chess, Try these links for helpful info… http://www.flolan-center.com/pages/flolan_pump.html http://www.pph-info.com/ http://www.phcentral.org/emo/diarypages/vickieh.html –Jaimes – Hide quoted text — Show quoted text -OGDENBX wrote: > HI > I have been diagnosed with Pulmonary Hypertension, Scleroderma , Raynauds and > Primary Biliary Cirrhosis. I was first dignosed with the Primary Biliary > Cirrhosis in 1989, then the Scleroderma and the Pulmonary Hypertension starting > a year and 1/2 ago. I has been getting worse and I am going to be catherized > soon and then given a Flolan Pump .Has anone been on the Flolan pump and did it > help. I am getting nervous and hope that I have made the right decision and > that it will work. It’s been a long time getting to this point and now I > worry. > HELP > DUCHESS
Response:
HI I have been diagnosed with Pulmonary Hypertension, Scleroderma , Raynauds and Primary Biliary Cirrhosis. I was first dignosed with the Primary Biliary Cirrhosis in 1989, then the Scleroderma and the Pulmonary Hypertension starting a year and 1/2 ago. I has been getting worse and I am going to be catherized soon and then given a Flolan Pump .Has anone been on the Flolan pump and did it help. I am getting nervous and hope that I have made the right decision and that it will work. It’s been a long time getting to this point and now I worry. HELP DUCHESS
no comment untill now