Scleroderma Information » Scleroderma » I have Morphea.
Question:
There’s an active chapter of the United Scleroderma Chapter in Houston. My friend Karen is a member (Bluebonnet Chapter). Karen is very involved with the university hospital there and can tell you about her excellent doctors. One of them, in fact — Dr. Allan Friedman — will be our guest at the AOL chat on Jan. 20th. Karen’s email address is KarenV…@aol.com. Ronni
Response:
To all – regarding morphea (sometimes spelled morphoea) — I’m currently diagnosed with linear scleroderma, but early in the disease (when I was about 8 years old) the doctors first termed it morphea. I never totally understood the difference before, but recent literature does a pretty good job of describing morphea. Morphea appears as plaques or ovals, like patches, and it can appear just about anywhere on the body. I don’t know how deep the involvement can go — if it can affect muscle, tendon and bone — perhaps there’s a doc out there with that info. Mine first appeared on the instep of the foot, in an oval shape. Later they discovered my whole leg was involved in the process, and I think that’s why the dx was changed to linear SD. There are a lot of good medical links on the "I Have Scleroderma" page. Also, write for the information packets available from the foundations and federations — they are excellent. Jean Turner turn…@cvfn.org ——————-==== Posted via Deja News ====———————– http://www.dejanews.com/ Search, Read, Post to Usenet
Response:
Chad, I’m not familiar with this particular type of S.D. but the Med School at U.T. has a wonderful staff of doctors who specialize in connective tissue disease. You would need to call the allegery and rhuematology dept at 713/704-0980. The doctor that I see is John Rievelle and I love him. Carol
Response:
My daughter (age 23) was diagnosed with morphea two years ago. I too scan the web for information. As I discover info, I will make sure you are forwarded. Dr. Gregg A. Donaldson
no comment untill now