Scleroderma Information » Scleroderma » Info gathering
Question:
Kathy, This is the study to which I was referring. Dr. Maureen Mayes, Wayne State University, is conducting this. Ronni
Response:
In the Detroit area, we have a Scleroderma Registry. It encourages all SD sufferers to sign up so that info can be gathered through questionaires. I think it’s a great idea. Kathy Wilkie – Hide quoted text — Show quoted text -Ayaussyoff wrote: > In article <33C64092.7FAE4…@epix.net>, Kate Nance <kna…@epix.net> > writes: > >We should all be involved in studies like this. This is the only way > >they can find commmon denominators. > Is this something we could lobby the doctors or the MULTIPLE SD orgs. for, > you think? What a simple, inexpensive way to gather lots of info! > Amie > —————– > There’s no waiting worth the misery > And there’s no wanting worth the tears… > —————–
no comment untill now