Scleroderma Information » Scleroderma » Info Scleroderma
Question:
Melston, as you can see there is a slew of us out here. Feel free to contact any of us. There are many sites online. Each of which have their own special blend of support. Each are unique. All are great. Hope to hear from you again soon. — Sherry Messick Surviving Scleroderma: http://SclerodermaSupport.com Scleroderma & Autoimmune Digest Email Support Group http://SclerodermaSupport.com/digest ******************************************** "Together We Can Beat The Odds"
Response:
Here are some more great sites: http://clubs.yahoo.com/clubs/sclerodermafriendsandfamily Diane has a wonderful site for caregivers. She even has chats with other cargivers. It is on Yahoo, so you have to join, but it is entirely free and painless (VBG). Micks’ terrific "My World of Scleroderma" can be found at: http://www.enetis.net/~rbreske/scleroderma.htm. Her site has literally a ton of links to other wonderful and informative scleroderma and related disease sites. The Scleroderma, We’re Not Alone site by Helen is also another wonderful site to get information. http://www.worldchat.com/public/scleroderma/ Also, the SD World Email Support List, Links, Chat Room, Message board is at: http://userzweb.lightspeed.net/~auntjudy/SDWorld/sdworld.htm Judy — SD World Scleroderma and Other Autoimmune Diseases Email Support List, Message Board , Chat Room http://userzweb.lightspeed.net/~auntjudy/SDWorld/sdworld.htm melston <mels…@mweb.co.za> wrote in message
news:37d0f31b.0@news1.mweb.co.za… – Hide quoted text — Show quoted text -> I searching for information on Scleroderma > My Granny Joan Elston Has it. > And I would be grateful for any information.
Response:
A great site with tons of links to other sites is the Scleroderma A-Z . The url for it is: http://www.sclero.org Syl melston <mels…@mweb.co.za> wrote in message
news:37d0f31b.0@news1.mweb.co.za… – Hide quoted text — Show quoted text -> I searching for information on Scleroderma > My Granny Joan Elston Has it. > And I would be grateful for any information.
Response:
Hi Melston, you have come to the right place to educate yourself on scleroderma. There is a multitude of helpful information online. You may want to begin by contacting The scleroderma foundation and have them send you literature about it. They may also have a listing of specialists in your grandmothers area that specifically treat scleroderma. They can place you in touch with a support group or chapter in your area that also may be able to supply you with some valuable information not to mention meetings you can attend. Online there are many sites focused on scleroderma. We are all just patients that work towards gathering what we can find online related to our disease or associated disorders. Some of the sites give the patient and their family a voice to share their story. Some of the sites offer interactive message boards, chats, etc. Basically we have become a strong family of support. I will share some links with you that you may enjoy visiting. I urge you though to have your grandmother check out anything she reads online with her personal physician before making any changes to her treatment or contemplating adding something new. Only her physician will know if it is right for her. The I Have Scleroderma Website is a great resource for sharing your story. Its focus is to give the patient, their friends and family a voice. Its webmaster "Amie Yaussy" also began a great chat community in yahoo. That link is also on her site. Main Site link: http://ihavescleroderma.com Doris Reichards has a beautiful relaxing website with many helpful places about nutrition and just pages to go to and find something to relax you. Main Site Link: http://www.toad.net/~dreichard/ Donna Armer has a great website devoted to Coping With Crest. Her site delves into the particulars on this form of limited scleroderma. Main Site Link: http://members.aol.com/REDAPRIL4/index.html Ed Harris has put together a fantastic resource for us in the form of a FAQ (Frequently Asked Questions). His link for this is: http://www.synnovation.com/sclerodermafaq.html I have a website called Surviving Scleroderma. Which is a network of medical information, related news and several support opportunities. A very supportive and large family has formed on the Scleroderma & Autoimmune Digest Email support group off of my site. Main Site link: http://SclerodermaSupport.com Digest Link: http://SclerodermaSupport.com/digest There are far too many other beautiful and very helpful sites online to list them all but you can view a list of them at most of the pages above. I will also share with you my related links page and you can go there and surf all the pages listed and find a wonderful place online. Related Links Page on Surviving Scleroderma: http://SclerodermaSupport.com/links As you can see there are many great resources online for you to learn more about scleroderma. If you are looking for an overview of the disease I do have a page on that at http://SclerodermaSupport.com/sdoverview Jump right in and surf all of our sites and many others listed in our links section and feel free to post here or join in any of the interactive places online and visit with us. Don’t hesitate to contact me by email anytime. — Sherry Messick Surviving Scleroderma: http://SclerodermaSupport.com Scleroderma & Autoimmune Digest Email Support Group http://SclerodermaSupport.com/digest ******************************************** "Together We Can Beat The Odds" melston <mels…@mweb.co.za> wrote in message
news:37d0f31b.0@news1.mweb.co.za… – Hide quoted text — Show quoted text -> I searching for information on Scleroderma > My Granny Joan Elston Has it. > And I would be grateful for any information.
Response:
I searching for information on Scleroderma My Granny Joan Elston Has it. And I would be grateful for any information.
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