Scleroderma Information » Scleroderma » Is this reflux?
Question:
Wow I can relate to that one. I thought I was losing weight cuz of the drugs. Imuran and DPenn which I just finished have strong side effects of anorexia (lack of desire to eat not that you think you are fat) I have been losing weight and now am skinny. I see my rheumy Oct 26 and was planning to ask about that. Got chubby before cuz of the cortisone. I had not made the connection between my bowel and weight. I guess that sounds silly but I just thought I had odd Bm’s. Diarhea and bloating. Thanks for the info. I will explore this with el doctor.
Response:
> Sherry , did my note go to you only?
Yes Linda it did. Only this one came through to the newsgroup — Love and Hugs From Sherry Messick Surviving Scleroderma http://www.SclerodermaSupport.com "Get Up, Stand Up and Fight to survive because Scleroderma Kicks you when you are down" "We are all Beacons Of Light for Each Other " Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can! / ____/_________ //////\ Have a Bewitching Halloween!! /// Q Q /// U // ___/
Response:
I have been told that I have reflux, but it does not sound like what I usually read about, so I would like some advice. I have CREST, but no acid coming up my chest. Just lately though I have had what I thought was "irritiable bowel syndrome", at least that is what I was told many years ago. What do you think? First I get gas, then pressure to make bowel movements, then nasuea, and vomiting, After that anything that is left in me comes out as diaherrea. Then I have a queasy stomach for days. I am afraid to eat anything solid. I have been given Propulsid for the reflux, and just yesterday Librex for the queasiness. All this had stopped two years ago just about the time I started the antibiotics doxiclycline and clindamycin. I was tested to make sure it was not the antibiotics. I also have no inflammation (I had a colenoscopy). I was told I do have divitriculosis (pockets in the digestive track). Does anyone have reflux that sounds like this? Sorry this is so graphic and disgusting, but I am really concerned, and uncomfortable. LindaTC
Response:
Sherry , did my note go to you only? I don’t see it on the board. Well, at least it went to the one person who has the same yucky symptoms. I did speak to my docs office. they told me to stay on liquids till I feel better. Well, I guess I will be a size 10 this way. Feel good, Linda
Response:
Thanks you all for your input. I guess I try to use denial of these symptoms. I now realize that I must have had reflux years ago! Once again I seem to have lost the symptoms. I can only hope they stay away. For you all too. Linda
Response:
Hi Linda: I have had reflux for many years however that doesn’t make me an expert. A lot of what you say is happening to you happens with sceroderma reflux and bowel symptoms. Boy, do I know about digestive problems from not making it to the toilet on time to bloated stomach that looks if I am 10 months pregnant. If forget to take my propulsid at night then.morning vomiting. . It doesn’t matter what I eat or how much I watch my diet. Lots of things help, raising the head of your bed on blocks, not eating late at night and not wearing things that are tight around your waist ,they have helped me a lot. I hope things are better for you. Gigi
Response:
Linda I have similar symptoms as you describe and my GI doc feels it is due to immobility of my bowels and colon. Unfortunately the common drugs that are used don’t seem to improve my gassy, crampy, and yes the rest of what you shared symptoms. — Love and Hugs From Sherry Messick Surviving Scleroderma http://www.SclerodermaSupport.com "Get Up, Stand Up and Fight to survive because Scleroderma Kicks you when you are down" "We are all Beacons Of Light for Each Other " Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can! / ____/_________ //////\ Have a Bewitching Halloween!! /// Q Q /// U // ___/
Response:
> sherry, thanks for the quick reply. I thought the reflux was just the acid > in > the throat. > I was not going to follow docs orders, but your response makes my head feel > better if not my gut. > Linda
Hi Linda since you intended your message to go to the NG I thought I would reply and quote your message in its entirety so it is shared in the NG. Going on soft or liquid diets and even veggie diets have helped me. They are hard to adhere to though. Meats or what I refer to as bulky foods are what seem to bother me the most. Meats, heavy amounts of pasta. I have found that I can tolerate about 1/2 cup of spaghetti without it cramping me. Now this has been going on for some time but has gotten much worse since my surgery in August. I think that the surgery through my body for a loop because my tummy troubles have multiplied since then. Meats are a big culprit. I cramp at first. I mean realllly cramp. The kind of gassy double over and cry cramping. This lasts for about 1 to 2 hours and happens off and on. Sort of like a squeazing cramp that begins and then gets worse and worse till it reaches a peak that you think you are about to die from and then it begins to ease up. Then it will make me feel like I need to go to the bathroom and I’ll have several bowel movements and then as you put it the diarrhea begins. Actually I am glad to see that come because this is when the pain ends. This routine continues for a few hours. These episodes happen everytime I eat meat, fresh fruit with skins, more than about 1/2 cup of pasta, and some dairy products. I use to only do it a few times a week and not always with any consistencies to definate foods but it has really seemed to present itself in a pretty constant manner over the last month. I have tried to eat anyway and just deal with the pain but my doc said that I am risking perforating my colon. I am sure this sounds very familiar to many of you. It is a horrible feeling and I really feel for anyone having to endure it. I have an appt with a dietician to try and work out a meal plan that we think I might be able to tolerate. Although I am not by any means skinny my weight has diminished significantly over the last month. Enough that we know something major is going on in my tummy. — Love and Hugs From Sherry Messick Surviving Scleroderma http://www.SclerodermaSupport.com "Get Up, Stand Up and Fight to survive because Scleroderma Kicks you when you are down" "We are all Beacons Of Light for Each Other " Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can! / ____/_________ //////\ Have a Bewitching Halloween!! /// Q Q /// U // ___/
Response:
Linda you might find the Surviving Scleroderma Gastrointestinal Involvement page beneficial to visit. Here is the link http://www.SclerodermaSupport.com/med-gi.html There is a lot of discussion there about Reflux and other GI problems we often encounter with scleroderma. — Love and Hugs From Sherry Messick Surviving Scleroderma http://www.SclerodermaSupport.com "Get Up, Stand Up and Fight to survive because Scleroderma Kicks you when you are down" "We are all Beacons Of Light for Each Other " Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can! / ____/_________ //////\ Have a Bewitching Halloween!! /// Q Q /// U // ___/
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