Scleroderma Information » Scleroderma » Life's Little Rituals
Question:
- Hide quoted text — Show quoted text -Carrie Moe wrote: > Apart from the obvious, scleroderma (with a small "s") has presented > obstacles with little things taken for granted for most of my life. > For a start, it’s difficult to pull on tights without either snagging them > with my fingers or tearing them with my heels. Preferring bare feet in > winter, socks were always left in the chest of drawers. Now on colder days, > two pairs are the best choice. > My favourite snack while watching telly (winter or summer) is a pure orange > juice ice lolly. There’s nothing like a glass of cold water when I come in > thirsty from a dog walk on a cold day. But a friend who has limited > scleroderma (with heart implications and loss of fingertips) recently told > me to be watchful of cold drinks. > Since then, I’ve discovered that a cup of freshly boiled water (cooled like > baby would drink) is a refreshing No-calorie beverage. > There was a time when I could jump in and out of the car with ease. Now it > takes longer and hurts a bit. I need one of those swivelling cushions that > Innovations mail order catalogue advertises. The sort Fergie could have > done with when she showed too much leg for politeness in her role as Duchess > of York. > Stairs and hilly regions of the forest are a major task some days and my > next home will be a bungalow. > Peeling onions was never pleasant and always made me cry. Now the stinging > juice penetrates through the tapes on my fingers and must be the worst job > of all. Time to buy another food processor. > Long queues form behind me as I struggle to open plastic carrier bags at > supermarket check-out. Further delays as I fumble for coins in my purse. > Having scleroderma has brought many gifts. I take more time out to relax – > watch a video or switch on the Pc and get online. This illness has taught > me many things like patience, tolerance, understanding, bringing new > friendship in it’s wake. > And I’ve learned to alter my rituals for the better.
Having read that twice, I know why I call you friend.Well written Josie. ex-pat Brit, Tab1
Response:
Beautifully said! – Hide quoted text — Show quoted text -Carrie Moe wrote in message <79soon$1o…@barcode.tesco.net>… >Apart from the obvious, scleroderma (with a small "s") has presented >obstacles with little things taken for granted for most of my life. >For a start, it’s difficult to pull on tights without either snagging them >with my fingers or tearing them with my heels. Preferring bare feet in >winter, socks were always left in the chest of drawers. Now on colder days, >two pairs are the best choice. >My favourite snack while watching telly (winter or summer) is a pure orange >juice ice lolly. There’s nothing like a glass of cold water when I come in >thirsty from a dog walk on a cold day. But a friend who has limited >scleroderma (with heart implications and loss of fingertips) recently told >me to be watchful of cold drinks. >Since then, I’ve discovered that a cup of freshly boiled water (cooled like >baby would drink) is a refreshing No-calorie beverage. >There was a time when I could jump in and out of the car with ease. Now it >takes longer and hurts a bit. I need one of those swivelling cushions that >Innovations mail order catalogue advertises. The sort Fergie could have >done with when she showed too much leg for politeness in her role as Duchess >of York. >Stairs and hilly regions of the forest are a major task some days and my >next home will be a bungalow. >Peeling onions was never pleasant and always made me cry. Now the stinging >juice penetrates through the tapes on my fingers and must be the worst job >of all. Time to buy another food processor. >Long queues form behind me as I struggle to open plastic carrier bags at >supermarket check-out. Further delays as I fumble for coins in my purse. >Having scleroderma has brought many gifts. I take more time out to relax – >watch a video or switch on the Pc and get online. This illness has taught >me many things like patience, tolerance, understanding, bringing new >friendship in it’s wake. >And I’ve learned to alter my rituals for the better.
Response:
From Sherry Messick: >We find little small things that we used to take for granted >as difficult and for some of us impossible to accomplish but we also >begin to appreciate the small things and we end up putting our life in >the proper perspective. I know this sounds crazy but I really believe I >am a better person because of having scleroderma. It has made me >appreciate people, and has made me more compassionate and giving to >others. I also have learned how to appreciate life no matter what the >situation is. So with all the woes of this disease I have learned a lot >from it to.
The same goes for me! But I have become less tolerant of people who "kvetch" incessantly over minor things. -Ronni- *********************************** Building Awareness for Scleroderma Is Crucial to Finding a Cure Scleroderma Foundation (1/800-722-HOPE)
Response:
Well said. We find little small things that we used to take for granted as difficult and for some of us impossible to accomplish but we also begin to appreciate the small things and we end up putting our life in the proper perspective. I know this sounds crazy but I really believe I am a better person because of having scleroderma. It has made me appreciate people, and has made me more compassionate and giving to others. I also have learned how to appreciate life no matter what the situation is. So with all the woes of this disease I have learned a lot from it to. We Are Raising Awareness of Scleroderma Providing Support, Information and News Sherry Messick, Surviving Scleroderma http://SclerodermaSupport.com Scleroderma Foundation Greater Washington DC http://sclerodermagw.org "Together we can beat the odds!" – Hide quoted text — Show quoted text -Amie Yaussy wrote: > Beautifully said! > Carrie Moe wrote in message <79soon$1o…@barcode.tesco.net>… > >Apart from the obvious, scleroderma (with a small "s") has presented > >obstacles with little things taken for granted for most of my life. > >For a start, it’s difficult to pull on tights without either snagging them > >with my fingers or tearing them with my heels. Preferring bare feet in > >winter, socks were always left in the chest of drawers. Now on colder > days, > >two pairs are the best choice. > >My favourite snack while watching telly (winter or summer) is a pure orange > >juice ice lolly. There’s nothing like a glass of cold water when I come in > >thirsty from a dog walk on a cold day. But a friend who has limited > >scleroderma (with heart implications and loss of fingertips) recently told > >me to be watchful of cold drinks. > >Since then, I’ve discovered that a cup of freshly boiled water (cooled > like > >baby would drink) is a refreshing No-calorie beverage. > >There was a time when I could jump in and out of the car with ease. Now it > >takes longer and hurts a bit. I need one of those swivelling cushions that > >Innovations mail order catalogue advertises. The sort Fergie could have > >done with when she showed too much leg for politeness in her role as > Duchess > >of York. > >Stairs and hilly regions of the forest are a major task some days and my > >next home will be a bungalow. > >Peeling onions was never pleasant and always made me cry. Now the stinging > >juice penetrates through the tapes on my fingers and must be the worst job > >of all. Time to buy another food processor. > >Long queues form behind me as I struggle to open plastic carrier bags at > >supermarket check-out. Further delays as I fumble for coins in my purse. > >Having scleroderma has brought many gifts. I take more time out to relax – > >watch a video or switch on the Pc and get online. This illness has taught > >me many things like patience, tolerance, understanding, bringing new > >friendship in it’s wake. > >And I’ve learned to alter my rituals for the better.
–
no comment untill now