Scleroderma Information » Scleroderma » my husband
Question:
My husband has scleroderma he has had it for 11 years. It wasn’t moving much for a few years but it has started up again. He has a lot of pain now he keeps a beard so people can’t see his hold face. Why is it when he goes out in the sun he turns dark really fast his skin that is. We were really suprised when he got it because they say women get and not men. He can’t work any more his hands are so thight that we can’t work with them.
Response:
I have known a couple of men who have the disease, but the majority does seem to be women. It is a difficult disease with so many different symptoms and many different treatments. Not being able to work anymore can be hard to cope with too. I hope you continue to keep in touch with the Group. Take care. Susan – Hide quoted text — Show quoted text -HoneykissK wrote: > My husband has scleroderma he has had it for 11 years. It wasn’t moving much > for a few years but it has started up again. He has a lot of pain now he keeps > a beard so people can’t see his hold face. Why is it when he goes out in the > sun he turns dark really fast his skin that is. We were really suprised when he > got it because they say women get and not men. He can’t work any more his hands > are so thight that we can’t work with them.
Response:
Some men also have Scleroderma. Dr. Flapan one of the founders of the Scleroderma Foundation (Tri-State) had it. << We were really suprised when he got it because they say women get and not men. >> There are also a few men in this Newsgroup. Wish you well. …Gigi
Response:
Why is it when he goes out in the sun he turns dark really fast his skin that is. I would like an answer to this one too. I get I real deep tan now. I never used to burn but this is a much deeper tan. Nancy
Response:
Twenty percent of people who have scleroderma are males. Ronni
Response:
On Mon, 26 Apr 1999 17:36:48 -0500, "Frank Nowling" <fra…@netropolis.net> wrote: >Honeykiss, >I’ve got SD; was diagnosed about a year and a half ago. I too learned that >SD was uncommon in men. Imagine my surprise when I found out that a >co-workers husband has it too. >The skin on my fingers has started thickening, and has begun to interfere >with my ability to handle small items such as small screws, and picking up >coins. Being a bit ‘clumsy’ doesn’t bother me as much as the diminished >sense of touch. >Frank >Houston, TX
Add me to that list of men that have SD or CREST, Frank and Honeykiss. What you said about your fingers, bears a striking resemblance to my condition. However, sympathetic I will be to your and other’s condition – because in plain English, SD and CREST can be a bitch – I feel a certain amount of comfort knowing that I am not alone in the world and ’singled out’ by having this condition or disease (Can anyone on this group define SD? Is it a CONDITION, or is it a DISEASE or is it something in between???). Not only is my ability to pick up small screws and such impaired, also my ability as a trumpet player was immensely so effected. Trumpet playing requires a great deal of finger mobility, something that has gradually diminished to the point where I had to give it up. Other factors contributed to this fate as well. It was most devastating to me at the beginning, and sometimes comes back to haunt me, as for much of my life this was my profession both on a full time and a part time basis. Not all is lost though, since I have a primary career with the Postal Service. Despite having CREST, I refuse to let it rule me to the point where I feel that I am of no use to myself and those around me. It’s easy to be bowled over if you let it. I have to be strong and know that there’s plenty of other stuff in me to make up for my having CREST. Be well and God bless! Bob – alle…@tiac.net ICQ 6418621
Response:
Honeykiss, I’ve got SD; was diagnosed about a year and a half ago. I too learned that SD was uncommon in men. Imagine my surprise when I found out that a co-workers husband has it too. The skin on my fingers has started thickening, and has begun to interfere with my ability to handle small items such as small screws, and picking up coins. Being a bit ‘clumsy’ doesn’t bother me as much as the diminished sense of touch. Frank Houston, TX HoneykissK <honeyki…@aol.com> wrote in message
news:19990426141958.01576.00005588@ng-ck1.aol.com… [CHOP] – Hide quoted text — Show quoted text ->We were really suprised when he > got it because they say women get and not men. He can’t work any more his hands > are so thight that we can’t work with them.
no comment untill now