Scleroderma Information » Scleroderma » photopheresis
Question:
I am in Madison WI. I have my plasmapheresis treatments done at the University of Wisconsin Hospital. Ed On 9 Apr 1999 19:07:46 GMT, lind…@aol.comnospam (LindaTC) wrote: – Hide quoted text — Show quoted text ->Ed, Thank you for your response. >I was hoping that I could talk to some one who actually use photopheresis, and >improved. So far, I have only found one person. >Where do you get the plasmapheresis? >Linda
Response:
Try Ed Harris or sherry/amie – Hide quoted text — Show quoted text -LindaRTC wrote: > Has anyone tried photopheresis? Or know anyone who has used it? I would like to > get more information. > Linda
Response:
Ed, Thank you for your response. I was hoping that I could talk to some one who actually use photopheresis, and improved. So far, I have only found one person. Where do you get the plasmapheresis? Linda
Response:
Linda, Below is a brief extract from my scleroderma FAQ located at: http://www.synnovation.com/sclerodermafaq.html - A treatment known as photopheresis (also called photochemotherapy) is under investigation for people with Scleroderma. During this procedure, blood in removed from the body (as in dialysis) and certain blood cells (monocytes) are "washed" with a drug (8- methoxypsoralen). The blood is then exposed to ultraviolet light (type A). It is hoped that this treatment might suppress collagen production and increase the levels of an enzyme that breaks down collagen (collagenase). Several studies have reported positive preliminary results but well controlled studies are still lacking. Results have been mixed on this treatment approach. For example, one diffuse patient locally has been receiving photopheresis for about a year. Initially, she showed noticable improvement, but recently she has returned to where she was before treatment. This treatment method is also very expense and is rarely covered by insurance. Bottom line – individual results vary. Hope this helps. Ed On 3 Apr 1999 01:03:50 GMT, linda…@aol.com (LindaRTC) wrote: – Hide quoted text — Show quoted text ->Has anyone tried photopheresis? Or know anyone who has used it? I would like to >get more information. >Linda
Response:
Has anyone tried photopheresis? Or know anyone who has used it? I would like to get more information. Linda
no comment untill now