Scleroderma Information » Scleroderma » prevalence & support groups
Question:
Hi Danielle, While I am much, much older than you, I have linear morphea SD also. I was diagnosed about eight years ago. The first two or three yrs. were the most difficult mainly because I was not well informed. I found that the more information I gathered the better I felt. While I realize this disease is individualized in terms of no two persons have exactly the same symptoms, if you would like to compare notes I would be happy to share my experiences with you privately or here on the NG forum. Don’t know of any groups for just linear morphea have been formed, but there are several on Yahoo for SD of all types. Warm regards, Bobbie R. – Hide quoted text — Show quoted text -> hi, my name is danielle di riscio, i’m 22 from nz & have linear morphea > scleroderma. > was wondering if anyone knows about the prevalence of this particular > type of scleroderma, and whether there are any groups in nz for people > with this. if not, i was thinking of starting one…
Response:
hi, my name is danielle di riscio, i’m 22 from nz & have linear morphea scleroderma. was wondering if anyone knows about the prevalence of this particular type of scleroderma, and whether there are any groups in nz for people with this. if not, i was thinking of starting one…
Response:
Prevalence of all morphea in the US is 2.7 per 100,000 population according to this – http://tinyurl.com/7rkr9 That would be about 8000 people in the US. Seems low to me. Contact the local Arthritis Association or Society to see if they know of any groups. They might also help you form one. Amie – Hide quoted text — Show quoted text -frisc…@gmail.com wrote: >hi, my name is danielle di riscio, i’m 22 from nz & have linear morphea >scleroderma. >was wondering if anyone knows about the prevalence of this particular >type of scleroderma, and whether there are any groups in nz for people >with this. if not, i was thinking of starting one…
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