Scleroderma Information » Scleroderma » Scleroderma
Question:
My wife has Scleroderma and I am trying to find a newsgroup for this subject so I can find out more inforamtion on the disease. I realize that I am not in the right group but any help would be appreciated. Thanks for your time Bruce
Response:
My wife has scleroderma and I am trying to find a newsgroup for this disease. I am new to newgroups so hopefully someone may point me in the right direction. Thanking you in advance. Bruce
Response:
Bruce Verner <bver…@pathcom.com> wrote: >My wife has Scleroderma and I am trying to find a newsgroup for this >subject so I can find out more inforamtion on the disease. I realize that >I am not in the right group but any help would be appreciated. >Thanks for your time >Bruce
Hi Bruce: I’m sorry about your wife’s diagnosis and I relate to both of your desire for more information about this. I checked my listing of newsgroups in my "Free Agent" (I have some 16,500 groups listed) and there wasn’t one for Scleroderma listed. I did a search on the internet and found the following: United Scleroderma Foundation PO Box 399 Watsonville, CA 95077-0399 1-800-722-HOPE They have a home page on the net. It’s: http://www.scleroderma.com/ The main menu is: http://www.scleroderma.com/main.html On the main menu, they have options for information about scleroderma, support groups and related net sites. And when I selected support groups from the main menu, I got: http://www.scleroderma.com/group.html On this page it listed some 70 Scleroderma support groups by geographic location and indicated that you could call the 800 number I listed above. It looked like there would be a lot of information there for you. I hope this helps! ((((Hugs)))) and o/ o/ Blessings o/ o/ Millie ser…@pacificnet.net
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