Scleroderma Information

Question:

Hi anyone here go to the conference this year-and what was it like and anything new. Doris

Response:

Hi Doris!  We missed you there.  A bunch of people went on the bus tour of downtown that you did and when they were talking about it, it reminded me of your comments on it! I don’t think there was anything earth-shattering said, but there was some interesting stuff. Dr Postelthwaite from the University of Tennessee had a really interesting presentation on the bovine collagen study (http://www.sctc-online.org/studies/bovine.htm) and what the theory is driving it.  The study has been extended so I think they may still be taking patients – check with one of the centers listed on the link.  The NIH funded about $15 million dollars in scleroderma-related research this year.  Unfortunately, the current administration in Washington only wants to increase this amount by 2%.  We visited our congresspeople and asked for more like 10%, please! It was hot as you-know-where on Capitol Hill but we all got through it. – Hide quoted text — Show quoted text -Doris wrote: > Hi anyone here go to the conference this year-and what was it like and > anything new. > Doris

Response:

Thanks for your response. It can get HOT in Washington and the marble steps certainly do not help the matter much. Doris "Amelia Yaussy" <ayau…@forcemail.com> wrote in message

news:3EFF4DA8.509@forcemail.com… – Hide quoted text — Show quoted text -> Hi Doris!  We missed you there.  A bunch of people went on the bus tour > of downtown that you did and when they were talking about it, it > reminded me of your comments on it! > I don’t think there was anything earth-shattering said, but there was > some interesting stuff. Dr Postelthwaite from the University of > Tennessee had a really interesting presentation on the bovine collagen > study (http://www.sctc-online.org/studies/bovine.htm) and what the > theory is driving it.  The study has been extended so I think they may > still be taking patients – check with one of the centers listed on the > link.  The NIH funded about $15 million dollars in scleroderma-related > research this year.  Unfortunately, the current administration in > Washington only wants to increase this amount by 2%.  We visited our > congresspeople and asked for more like 10%, please! > It was hot as you-know-where on Capitol Hill but we all got through it. > Doris wrote: > > Hi anyone here go to the conference this year-and what was it like and > > anything new. > > Doris

Response:

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