Scleroderma Information » Scleroderma » SF newsletter naming
Question:
I’m new to the net, but not to scleroderma. For the last 3 years I’ve had the facial numbing/tingling sensation so much so that I was afraid I’d had a stroke (I also have pulmonary hypertension & reg. high blood pressure. For the longest time the Drs. ignored it and said it was related to pss. It has taken my present Dr. l yr., but finally it is under control most of the time. He has explained that the neuropathy/tingling is caused by excessive pressure on the nerve endings, which I have since read in other research. Iam being treated for this problem with 100-150 mg. Doxepin daily. I take it at night as it does tend to make you drowsy and since taking it at night I’m also sleeping much better! e-mail: ju…@webtv.net Hope this helps others! Thanks for your time, have a great day. LOL & soft hugs! Judy
Response:
Did you see in the formerly-known-as-The-Beacon-and-The-Spectrum that the SF is looking for a new name for the newsletter? Come on, this is the newsgroup that puts scleroderma symptoms to music… Me first: "SscleroNews" "710.01" (no, not "Beverly Hills, 710.01!") "Scleroderma Now" (although I admit that sounds like a bunch of feminists with blue hands…) Okay, so YOU do better! — Amie http://pw1.netcom.com/~yaussy/
Response:
OK Here goes my contribution to naming the new newsletter. The Lighthouse The lantern The Nations SclerNet News Ok now I don’t like those either but I’m drawing a blank here. LOL. Ok this should get our creative juices flowing. Respond all you Scler Mites. haha. Love Sherry
Response:
How about "SNews"….(Snooze? 
)….Sorry! I couldn’t help myself! Ar ar ar….. But seriously folks…. How about "The Speir" ….? It’s an old Scottish term meaning "to seek after" Jacquie I’m experiencing amnesia and deja vu at the same time, I think I’ve forgotten this before.
Response:
I like the Speir. They could use the american phrase The Sphere. Hmmmm. Now I’m curioius as to what it will turn out to be named.
Response:
I have it. I really like this suggestion The Horizon Sherry
no comment untill now