Scleroderma Information » Scleroderma » slceroderma and primary biliary cirrhosis
Question:
Shelley, I don’t have PBC, but I have had the kidney/blood pressure problems. Are you on an ACE inhibitor for your BP? My BP has wildly fluctuated ever since kidney complications, and I’ve even take ACE and ARB together to bring it down. I’m now on the ARB (along with calcium channel blockers) exclusively, but still had a fluctuation in the last few weeks that forced my dosage to double. Amie – Hide quoted text — Show quoted text -shelley.gio…@btinternet.com wrote: >Hi all, >Just wanted you to know that in order to keep my slceroderma from being >lonely, I have just been diagnosed with primary biliary cirrhosis as >well. Ive still got very high blood pressure despite having lots of >pills to get it under control and have been warned that i am at risk of >a scleroderma crisis. Has anyone else in the group got these three >delightful ingredients, if so would like to hear how they have got on, >also welcome any other comments regarding the links to these deseases. >As usual not a lot of information was provided from the local hospital >and as knowledge is power, thought I would return to the site that gave >me such helpful information when i first found out about the >scleroderma. >Many thanks for reading this
Response:
shelley.gio…@btinternet.com wrote: > Hi all, > Just wanted you to know that in order to keep my slceroderma from > being lonely, I have just been diagnosed with primary biliary > cirrhosis as well. Ive still got very high blood pressure despite > having lots of pills to get it under control and have been warned > that i am at risk of a scleroderma crisis. Has anyone else in the > group got these three delightful ingredients, if so would like to > hear how they have got on, also welcome any other comments regarding > the links to these deseases. As usual not a lot of information was > provided from the local hospital and as knowledge is power, thought I > would return to the site that gave me such helpful information when i > first found out about the scleroderma. > Many thanks for reading this
Hi Shelly, that’s no good. When it comes to disease, there should be a "Only one to a customer" rule. 
I’ve been having some BP problems too lately, but I think I’ve discovered they are self-induced. Too much coffee. Good luck to you! dave — A person who won’t read has no advantage over one who can’t read. -Mark Twain
Response:
Hello Shelley and everyone 1 I do have Scleroderma and high blood pressure along with many other problems that are now surfacing, I guess like you said, to keep the Scleroderma company. I do not have primary biliary cirrhosis. I just wanted to address the high blood pressure and what I have done to get it lowered after many years. First off I take my own readings 3 times a day and I record it on a chart that my son made me and I do it from Wed. to Tues. which is a week. When I visit my doctor I take the chart along to let him see what it is doing and by doing this the doctor can see what the readings are for the home monitoring. I also have restricted my salt content and started eating fruits and veggies high in potassium. I also purchased a book which is called Reversing Hypertension-by Julian Whitaker, M.D., this was very helpful in me reaching my goal which was to either get off the meds or reduced the meds. and to help ward off kidney problems. I succeeded in reducing the medication. As in January 2005 I was on 280 mg. of BP meds and as of today I am on just 95 mg. of meds for BP. As of my last doctors appointment in June my BP in the doctor’s office was 120/75. In January it was 160/75. I also found if I do not watch what I eat the BP goes way up. Just last night we had crabs steamed for supper and the last reading of my BP was 137/80. Dave yes the coffee will do it especially if it was not decaf. Doris "Dave Wilcher" <davewilc…@gmail.com> wrote in message
news:qUJOe.43704$gB.20607@tornado.ohiordc.rr.com… – Hide quoted text — Show quoted text -> shelley.gio…@btinternet.com wrote: >> Hi all, >> Just wanted you to know that in order to keep my slceroderma from >> being lonely, I have just been diagnosed with primary biliary >> cirrhosis as well. Ive still got very high blood pressure despite >> having lots of pills to get it under control and have been warned >> that i am at risk of a scleroderma crisis. Has anyone else in the >> group got these three delightful ingredients, if so would like to >> hear how they have got on, also welcome any other comments regarding >> the links to these deseases. As usual not a lot of information was >> provided from the local hospital and as knowledge is power, thought I >> would return to the site that gave me such helpful information when i >> first found out about the scleroderma. >> Many thanks for reading this > Hi Shelly, that’s no good. When it comes to disease, there should be a > "Only one to a customer" rule. > I’ve been having some BP problems too lately, but I think I’ve > discovered they are self-induced. Too much coffee. > Good luck to you! > dave > — > A person who won’t read has no advantage over one who can’t read. > -Mark Twain
Response:
Hi all, Just wanted you to know that in order to keep my slceroderma from being lonely, I have just been diagnosed with primary biliary cirrhosis as well. Ive still got very high blood pressure despite having lots of pills to get it under control and have been warned that i am at risk of a scleroderma crisis. Has anyone else in the group got these three delightful ingredients, if so would like to hear how they have got on, also welcome any other comments regarding the links to these deseases. As usual not a lot of information was provided from the local hospital and as knowledge is power, thought I would return to the site that gave me such helpful information when i first found out about the scleroderma. Many thanks for reading this
no comment untill now