Scleroderma Information » Scleroderma » Stress
Question:
True Patsy. You just have to adjust to the environment and not allow the remarks to bother you. There are many people still visiting here for the right reasons. That is obvious by the fact that when helpful, exciting, informative messages are posted about scleroderma you see many new names pop up in response. So let’s all just keep on posting good things and ignore the bad and carry on with life. JSPSPS wrote in message <1998042417121700.NAA01…@ladder03.news.aol.com>… >>Any lurkers
Most of us desperately need comfort – Hide quoted text — Show quoted text ->and encouragement from each other to maintain a positive attitude with this >disease. So after a few weeks of gritting my teeth whenever I looked at this >board, I’ve adjusted and hope that if we positive people write in and share, >others will follow. Let’s do it. >Patsy
Response:
Sherry I firmly feel that you personally are one of the people that should remove yourself from this area. You started off trying to educate and offer support. That was wonderful. It has gone out of control. What you offer on the surface seems ingenius but in reality you give very mixed signals. You claim not to give medical advice or recommend physicians. Just in the passed two days you are full if questions about the drug methotrexate and have indicated that you do not agree with Dr. Wigley. The very doctor that you constantly quote and stress how his knowledge about scleroderma is far beyond that of any medical researchers. Then you turn around and address a question to "Amie" another "medical authority".. I don’t get it. Either you trust your doctor or you don’t. To spell out these sort of misgivings in an area where new patients lurk and instill a question mark within them that deals with one of the top scleroderma specialists in this country is unfair. Amie is so fightened by her disease that this shows with every post. This is normal but if that is her position she too should remove herself from being a moderator for any area until she has her own emotions under control. I recieved a letter concerning Kate Knance. I had wondered what her actual reason was for giving up her website. I had originally feared that her illness had exacerbated. My communication was not directly with her but I was told that she just gave up. It seems that her every idea was copied and then embelished and she did not want to change her style and it became unpleasant to be connected to the direction that the online info was being handled. I used to love her site as it was always understandable. Anything that she put up was first reseached and reworded so all could understand. Kate did not link on to anything she personally could not explain herself. I am very surprised that she is allowing you and Amie to take over. It seems more as if she has given up. If this is the case it is a tremendous loss to everyone. Sherry, Amie. Deanboar etc. if you leave these areas with all your technical nonsense it will then have a chance to be an avenue of support again. For all who come here just take a look at the fibro board. The closeness and friendships that have emerged from true caring and acceptence. There are very few websites ever quoted there is a personalisation there that is depended on. This is the type of non medical support which is needed here. So Sherry if you limit yourself to your news letters and your own message boards and leave a few open spaces then the "lurkers" will have a place to visit. All day every day the same few. It is just like a group of teens in highschool competing for popularity. Nothing will come of it but hurt. Sharon – Hide quoted text — Show quoted text -Sherry Messick wrote in message <6hqhqv$d0…@winter.news.erols.com>… >True Patsy. You just have to adjust to the environment and not allow the >remarks to bother you. There are many people still visiting here for the >right reasons. That is obvious by the fact that when helpful, exciting, >informative messages are posted about scleroderma you see many new names pop >up in response. So let’s all just keep on posting good things and ignore the >bad and carry on with life
Response:
Stress makes everything worse that is for sure. ……Gigi << From: tnt…@aol.com Date: Thu, Feb 15, 2001 3:04 PM >> << I have a question. My Doctors have told me to avoid Stress and the literature I’ve read also emphasizes this. Though I wasn’t aware of it, I’ve had this disease (CREST) for six years or so, and I’ve never noticed my symptoms worsening under stress. So have you all noticed your symptoms being exacerbated by stress, and if so what type of stressful situations seemed to cause it? And if you have other health problems does stress effect them more, less, or just the same as it does the scleroderma? Maybe, I don’t quite believe it, because I don’t understand the mechanism by which stress would cause the same symptoms as cold (in Raynauds). And it seems that if stress does effect the physical condition then something like biofeedback would be very effective in treating the symptoms. Tracy —– Posted via NewsOne.Net: Free (anonymous) Usenet News via the Web —– http://newsone.net/ — Free reading and anonymous posting to 60,000+ groups NewsOne.Net prohibits users from posting spam. If this or other posts made through NewsOne.Net violate posting guidelines, email ab…@newsone.net >>
Response:
I have a question. My Doctors have told me to avoid Stress and the literature I’ve read also emphasizes this. Though I wasn’t aware of it, I’ve had this disease (CREST) for six years or so, and I’ve never noticed my symptoms worsening under stress. So have you all noticed your symptoms being exacerbated by stress, and if so what type of stressful situations seemed to cause it? And if you have other health problems does stress effect them more, less, or just the same as it does the scleroderma? Maybe, I don’t quite believe it, because I don’t understand the mechanism by which stress would cause the same symptoms as cold (in Raynauds). And it seems that if stress does effect the physical condition then something like biofeedback would be very effective in treating the symptoms. Tracy —– Posted via NewsOne.Net: Free (anonymous) Usenet News via the Web —– http://newsone.net/ — Free reading and anonymous posting to 60,000+ groups NewsOne.Net prohibits users from posting spam. If this or other posts made through NewsOne.Net violate posting guidelines, email ab…@newsone.net
Response:
In article <6hps1t$t8…@gte1.gte.net>, "Tim Duval" <t…@gte.net> writes: > PLEASE!! If it is at all >possible, would someone stop posts that are not in the direction of >knowledge or support.
Hello Tim, I agree. The way to stop it would be to become a moderated board. I don’t know how we would go about it, but am willing to look into it if there are others who want it. I only hope that there are still other people coming to the board. Any lurkers willing to step forward just to say you’re still here? Or maybe someone knows what to do and how to do it? Anybody coming accross this board with no knowledge of SD would go away with the assumption that it causes severe mental problems. Gill
Response:
<tnt…@aol.com> wrote in message news:96h98c$78g$1@news.netmar.com… > I have a question. My Doctors have told me to avoid > Stress and the literature I’ve read also emphasizes > this. Though I wasn’t aware of it, I’ve had this disease > (CREST) for six years or so, and I’ve never noticed my > symptoms worsening under stress. > So have you all noticed your symptoms being exacerbated > by stress, and if so what type of stressful situations > seemed to cause it? And if you have other health > problems does stress effect them more, less, or just the > same as it does the scleroderma?
I rarely have Raynauds these days, except when my hands or feet get very cold. When I was working, my hands would turn blue at every stressful moment. > Maybe, I don’t quite believe it, because I don’t understand > the mechanism by which stress would cause the same > symptoms as cold (in Raynauds). And it seems that if > stress does effect the physical condition then something > like biofeedback would be very effective in treating > the symptoms.
Possible, but two different causes could have the same effect. But it’s worth a try! dave
Response:
>Any lurkers >willing to step forward just to say you’re still here?
Hi, I’m a lurker who decided yesterday that in order to reclaim this board as a source of help and comfort, it was time to jump in. I’m fairly new to the internet and was so thrilled to find sites that could help me. When I found this one, I was appalled at the content. Most of us desperately need comfort and encouragement from each other to maintain a positive attitude with this disease. So after a few weeks of gritting my teeth whenever I looked at this board, I’ve adjusted and hope that if we positive people write in and share, others will follow. Let’s do it. Patsy
Response:
Hi Folks, First I would like to thank everyone who wants to enlighten themselves on SD or are having a hard time dealing with their emotions like myself. I’m gravely ill as many of you are. I know that this newsgroup has help me in many ways. Stress is hard on all of us. I have spent 2 hours reading the posts to this newsgroup. I used to feel comfort in learning that I was not alone. That others existed like myself. PLEASE!! If it is at all possible, would someone stop posts that are not in the direction of knowledge or support. If I felt stronger I would take this challenge. But I’m not. I feel so stressed after 2 or 3 weeks of weeding out the personal BS of just a few. That I dread reading the newsgroup. Tim
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