Scleroderma Information » Scleroderma » Swallowing Difficulties
Question:
My mother has had CREST for almost six years now. Most of her symptoms have remained the same until recently. She is now havig difficulties swallowing. I have heard of this condition among individuals with CREST, but I am curious what causes this, does the condition worsen, and is there anything she can do for it? Any information/comments are appreciated. Sincerely, Tracy W.
Response:
I HAVE HAD SCLERODERMA FOR ALMO ST 20 YEARS. I STILL FEEL PRETTY ;LOST ,MOST OF THE TIME. I AM TYPING THIS WITH MY TWO LITTLE FINGERS…………..I AM 42 YEARS OLD AND WOULD LIKE TO COMMUNICATE WITH SOMEONE WHO WOULD BE INTERESTED AND WOULD CONSIDER A WRITING FRIENSHIP. I BECAME A GRANDMOTHER LAST YEAR TWICE! MY GRANDSON WILL BE A YEAR OLD ON TUESDAYTHE 15TH OF APRIL. AND MY GRANDDAUGHTER WILL BE ONE IN AUGUST! I AM INTERESTED IN PEOPLE WHO WOULD KNOW ABOUT THE POSSIBILITY OF PASSIING THIS DREADED DISEASE ON TO FUTURE GENERATIONS! THIS HAS BEEN ONE OF MY GREAT CONCERNS. BOTH MY CHIL;DREN AGES 20 AND 23 HAVE LOW IMMUNE SYSTE,MS AND ARE ANEMIC. THE BABIES ARE JUST FINE EXCEPTFORA LOW IRON COUNT. I WOULD LIKE TO CONTACT SOMEONE WHOIS A GRANDPARENT AND HAS SCLERODERMA.
Response:
While we’re waiting for a cure, let’s get someone to finance an "SD Colony" for us so everyone can reduce their Raynaud’s attacks. I’ve heard Arizona is nice. I also really liked the east coast of the Yucatan Pen. in Mexico, too. Maybe we could get the federal government to buy Cozumel for us. Any other good warm places?? Amie Y. visit the I HAVE SCLERODERMA website – http://www.epix.net/~knance/
Response:
Mike Cornwell wrote: > My mother has had CREST for almost six years now. Most of her symptoms > have remained the same until recently. She is now havig difficulties > swallowing. I have heard of this condition among individuals with CREST, > but I am curious what causes this, does the condition worsen, and is > there anything she can do for it? Any information/comments are > appreciated. > Sincerely, > Tracy W.
To add to Dee Dee’s excellent message – Motility problems can be made worse by some drugs used to treat Raynaud’s and also by narcotic pain meds like Percocet or tylenol and codiene. Drugs like these can make swallowing (and digestion) more sluggish. Scarring in the esophagus is caused by stomach acid passing up into the esophagus. It is important for people who have SD to take drugs that reduce stomach acid like Pepcid or Prilosec. In many cases this can prevent the scar tissue from forming. Kate Nance I HAVE SCLERODERMA http://www.epix.net/~knance/
no comment untill now