Scleroderma Information » Scleroderma » thankful for all the support and imformation that all of you are
Question:
Hey Ann, All of have a run in with joint/muscle pain and stiffness. I sleep on a feather mattress on top of my regular one with flannel sheets even in the summer. It helps to keep me warm and aleveiate stress on the joints. My hips and back bother me the most at night. If my hands get bad, I use pareffen wax treatments. You can get the supplies at any beauty supply store. Pain killers and anti-imfammatorys are good, but please only use them when needed. Exercise and meditation work on the days when I am not at what I call med me up and knock me out stage. When I say exercise, I am talking about walking. Plus it helps calm you and you need this. This is not a easy condition to live with and it is wonderful that we have this newsgroup to exchange information and tips on how everyone copes physically/emotionally and mentally. Sherry is right about topical rubs as they can do us more harm than good so please speak with your doctor before using anything OTC. Has anyone else have any suggestions for Ann? Love and Hugs Colleen – Hide quoted text — Show quoted text -Ray WORLEY wrote: > giving me,also i have a question,does any one have joint pain? could you > give me any ideal > how to cope,what seems to help. > thanks ann
Response:
giving me,also i have a question,does any one have joint pain? could you give me any ideal how to cope,what seems to help. thanks ann
Response:
Ann, I have horrible joint problems. Especially in my knees and one of my ankles. It varies from just pain to swollen hot inflamed joints. A warm bath has helped me a lot. We have a hot tub in our master bath and I enjoy sitting in that a lot when my joints are achy. So it doesn’t dry out my skin I do use baby oil in my bath water when I intend to soak. I now have a lot of trouble getting in and out of it alone so I am a bit limited as to when I can use it. Be real careful about using topical creams for the joint pain. Talk to your doctor. Many of these can and do irritate the skin. I can’t tolerate ice packs when the joints are swollen so I use heat. It doesn’t help much with the swelling so I usually elevate the swollen joint to try and reduce swelling. Also if the pain gets too intense talk to your doctor about pain pills. I know we all hate the idea of using those because of our fear of dependency but my doctor told me that if the pain is real that you are taking the drug for then the risk of dependency doesn’t exist. He said it is those that continue to take the medication after the pain is gone that can get dependent. So my theory is that if you are suffering it is worth taking the drugs to help ease the pain until things improve. I wish I had a magic wand to make all of our pain go away. — Love and Hugs From Sherry ********************************************** You Are Never Alone, Find Support Online We Are sharing information, news and providing support Surviving Scleroderma, http://SclerodermaSupport.com Scleroderma Foundation of Greater Washington DC http://sclerodermagw.org ********************************************** "Together We Can Beat The Odds" Ray WORLEY <RAY…@webtv.net> wrote in message
news:2148-373FC15A-113@newsd-253.iap.bryant.webtv.net… – Hide quoted text — Show quoted text -> giving me,also i have a question,does any one have joint pain? could you > give me any ideal > how to cope,what seems to help. > thanks ann
Response:
Hi Ann! I developed RA symptoms last spring and I am on Prednisone and Methotrexate. They are working very well to help the joint problems. This time last year, I was unable to lift cups, hairbrushes, dress myself, and now I can do everything again with little pain and swelling. There are side effects to these drugs, but if you wish to talk more, please write me at my home address. Hang in Susan – Hide quoted text — Show quoted text -Ray WORLEY wrote: > giving me,also i have a question,does any one have joint pain? could you > give me any ideal > how to cope,what seems to help. > thanks ann
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