Scleroderma Information » Scleroderma » the Connector
Question:
Doris wrote in message <1Z7p3.10857$Li1.28817…@news-read1.qis.net>… >Where can I find this newsletter so I can read the article on participation >in testing new drugs etc.
Here’s info from a page about DMSO – all links I could find to a website for SIF were dead: The Scleroderma International Foundation (SIF) needs help to: Reach out to people isolated with scleroderma Develop education/support groups Raise funds to promote new research efforts Increase public awareness of scleroderma Strengthen physician training to further prompt diagnosis and improve therapy Support The Connector, the newsletter of the Scleroderma International Foundation, which is issued quarterly with updated material concerning research and treatment. The efforts to eradicate major diseases like scleroderma have always been financed by patients, their families and a concerned public. To achieve our goals, we need your support. You can help to conquer scleroderma. Fund-raising is very important to the Scleroderma International Foundation. And your generous donation is, of course, tax deductible. If you are interested in helping, please get in touch with us at: Dr. Stanley Jacob (503)494-8474
Response:
Where can I find this newsletter so I can read the article on participation in testing new drugs etc. I have been in several clinical trials? Doris
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Thanks User 115827 for the information?
Response:
Where can I find this newsletter so I can read the article on participation >in testing new drugs etc.
The International Foundation is at 704 Gardner Center Road, New Castle, Pennsylavania 16101. It has raised a lot for research and was set up by Arkie Barlet, a scleroderma patient, who died recently. I like their newsletter. Nancy
Response:
I used to get the connector from the SIF. I have a friend who used DMSO. She is really doing well now, thanks to Dr. Jacob. I am sorry to hear that Arkie Bartlet died. since I haven’t received the newsletter in a long time I wasn’t aware of it. <<From: user1158 >> << The International Foundation is at 704 Gardner Center Road, New Castle, Pennsylavania 16101. It has raised a lot for research and was set up by Arkie Barlet, a scleroderma patient, who died recently. I like their newsletter. Nancy >> I used to like their newsletter too. Thanks …..love Gigi
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