Scleroderma Information » Scleroderma » Where Is All the Info and Support?
Question:
>Why is there nothing here but porn etc. since I stopped
Could it be because they are from hotmail accounts? Perhaps the complainer is the culprit. Hmmmmmmmmm.???????
Response:
I intentionally stayed off the News Group for two days as the same four people that were on AOL contradicting my every word followed me here and did the same. My e-mail is still growing from SD patients with legitimate questions. Why is there nothing here but porn etc. since I stopped posting?. Was your only reason for coming here to create confusion about what I had to say. I hope not. The questions that I am recieveing personally should either go here or on to the AOL board. I think it time for someone to make a statement. Or was I correct when I said that these two groups were being used by simply four individuals as a personal e-mail stop over. I think that the shape that this news group is in is disgraceful. With me not posting there in no scleroderma info and the only other thing that was here were your verbal attacks on me. It is so evident that your intent was just to argue. I will answer as much of the mail as I can but much of it is beyond my knowledge and please start to post your questions here. I would like to see my critics respond. I have a letter from a patient which states it all. I am going to ask permission to post it. It really shows what the outside world has to think about the posts that appeared in the last few weeks. Remember that only AOL allows 5 screen names. Other ISPs such as Sprint only have one per account. So it is evident that there were many just writing and answering themselves. Sharon
Response:
- Hide quoted text — Show quoted text ->: Where Is All the Info and Support? >From: jbry…@csulb.edu (Jack Bryans) >Date: Sat, Apr 18, 1998 20:34 EDT >Message-id: <2hiuo61wfc….@wren.acs.csulb.edu> >In article <6hauu3$pt…@newsfep3.sprintmail.com> "Sharon27" ><Sharo…@sprintmail.com> writes: >> I . . . my . . . me . .. My . . . . . . I . . . . . . I . . . >> I . . . . . . I . . . I . . . . . . I . . . I . . . I . . . >> . . . me . . . me. I . . . I . . . my . . . I . . . my . . . >> I . . . I . . . >Hope that clarifies. >Jack ></PRE></HTML>
Pardon me???????????
Response:
>With me not posting there in no scleroderma info
Sharon/Mia/Miriam/Sheri/User, with all your knowledge and so many supporters, why haven’t you taken us up on the offer to do a chat? You keep ignoring this. By the way, nobody with any of the above names has anything to do with the scleroderma research foundation in NJ. This is a small, local organization and the only workers are those who work for Manny and Meg Corronis’s other company. Also, there is no conflict between this group and the large SRF in California.
Response:
In article <6hauu3$pt…@newsfep3.sprintmail.com> "Sharon27" <Sharo…@sprintmail.com> writes: > I . . . my . . . me . .. My . . . . . . I . . . . . . I . . . > I . . . . . . I . . . I . . . . . . I . . . I . . . I . . . > . . . me . . . me. I . . . I . . . my . . . I . . . my . . . > I . . . I . . .
Hope that clarifies. Jack
Response:
Mia, Sharyn, We all know you are one and the same because you mis spell the same words. Dean agreed to stop arguing with you and when you didn’t post for a day or so the group returned to the sort of conversation this place is meant to be. Your messages today prove that you have no reason for coming here other then to disrupt. You preach on being so worried about others but you are only here to argue not to support anyone. Just hush. My goodness you need a new personality and this time create a nice one.
Response:
SORRY HIT THE POST BUTTON TWICE
no comment untill now