Scleroderma Information » Scleroderma » Where is everyone?
Question:
It’s been very quiet since I joined about a month ago. I’ve just been diagnosed with scleroderma (maybe). The RD thinks I should be able to pull up a fold of skin on top of my fingers. I don’t remember ever being able to do that, at least for many years. Anyone else? – Hide quoted text — Show quoted text -GRamos3414 wrote: > This used to be a very busy board but lately noone has been posting where did > everyone go.?Where is Colleen,Soc Jog ? Doris I see messages from once in > awhile. I know Josie doesn’t post anymore but where is everyone else? > How is everyone doing? I am pretty stable and have been for a long time.I miss > seeing messages on this board……..Gigi
Response:
Gigi I am here, but just very quiet! Really don’t have much to say after the Bombshell hit a few days ago, just trying to put everything into perspective and trying to understand-who can I trust! I am doing good in some kind of remission, but I will accept it with open arms and not talk to loudly about it. We escape the snowstorm that was predicted here in Maryland-but the areas North of us like NY, CT and Boston got dumped on. My son who is in the NAVY is in upstate NY can’t wait till he gets home to see if he enjoyed the snow as where he lives in VA very seldom gets any? Take care all and have a good weekend. Doris Amelia Yaussy <ayau…@forcemail.com> wrote in message
news:986hac0bcj@news2.newsguy.com… – Hide quoted text — Show quoted text -> I’ll bet folks are here, just quiet. I’ve been guilty of that myself – will > be better, promise! > GRamos3414 wrote in message > <20010307172137.10329.00000…@ng-ck1.aol.com>… > >This used to be a very busy board but lately noone has been posting where > did > >everyone go.?Where is Colleen,Soc Jog ? Doris I see messages from once in > >awhile. I know Josie doesn’t post anymore but where is everyone else? > >How is everyone doing? I am pretty stable and have been for a long time.I > miss > >seeing messages on this board……..Gigi
Response:
This used to be a very busy board but lately noone has been posting where did everyone go.?Where is Colleen,Soc Jog ? Doris I see messages from once in awhile. I know Josie doesn’t post anymore but where is everyone else? How is everyone doing? I am pretty stable and have been for a long time.I miss seeing messages on this board……..Gigi
Response:
I’ll bet folks are here, just quiet. I’ve been guilty of that myself – will be better, promise! GRamos3414 wrote in message
<20010307172137.10329.00000…@ng-ck1.aol.com>… – Hide quoted text — Show quoted text ->This used to be a very busy board but lately noone has been posting where did >everyone go.?Where is Colleen,Soc Jog ? Doris I see messages from once in >awhile. I know Josie doesn’t post anymore but where is everyone else? >How is everyone doing? I am pretty stable and have been for a long time.I miss >seeing messages on this board……..Gigi
Response:
On 07 Mar 2001 22:21:37 GMT, gramos3…@aol.com (GRamos3414) wrote: >This used to be a very busy board but lately noone has been posting where did >everyone go.?Where is Colleen,Soc Jog ? Doris I see messages from once in >awhile. I know Josie doesn’t post anymore but where is everyone else? >How is everyone doing? I am pretty stable and have been for a long time.I miss >seeing messages on this board……..Gigi
Hi Call it the winter blahs. Up here in Massachusetts, I’m seeing the sun for the first time in days. Although we didn’t get a record amount to snow, it was enough to make things miserable. Naturally, because it’s March and the snow removal budget is nearly flat, the streets are a bit more messy than usual. Lost power for a total of two hours last night. It’s a stressful situation because there is no heat and you never know how long the outage is going to last. So far so good now. BOB – "Be yourself as long as you’re exactly like me" – anonymous
Response:
Thanks for writing in I am glad to see that everyone is still there but we can’t all lurk. Glad to see messages from Amie and Bob and also the new person. I guess more people would continue to write if we old timers(in my case both literally and figuratively) would write and answer them………Love Gigi
Response:
Linda, WOW! There is a ton of information on your site. Great links to just about everywhere! Well done! –Jaimes – Hide quoted text — Show quoted text -LindaRTC1 wrote: > I haven’t visited here in a long time. > I built a website about Mixed Connective Tissue Disorder..a form of SD. That > has kept me very busy. > Hope you all are well, > Linda > http://hometown.aol.com//lindartc/index.htm
Response:
Actually, I thought we’ve been posting pretty regularly the past few weeks. We had some interesting threads on workplace-induced scleroderma with exposure to silica. "Doris" <dreich…@toad.net> wrote in message
news:G1nt6.3659$Og1.314142@news.abs.net… – Hide quoted text — Show quoted text -> We are here, but it seems everyone is only reading and not posting these > days. I bookmarked your site to get back to it when I have more time. We > need another MCTD website out there as there are not many. From just > scanning over it looks every extensive. > Doris > LindaRTC1 <lindar…@aol.comlindatc> wrote in message > news:20010318210924.07174.00001459@ng-mj1.aol.com… > > I haven’t visited here in a long time. > > I built a website about Mixed Connective Tissue Disorder..a form of SD. > That > > has kept me very busy. > > Hope you all are well, > > Linda > > http://hometown.aol.com//lindartc/index.htm
Response:
Gigi, Hello to you. Yes, I know what you mean. Maybe everyone has spring fever and is out planting posies. I am glad to hear you are doing well. I can say the same, thank goodness. Here in the Northwest we are experiencing some fine weather but I did see that the Northeast has had some awful snowstorms and blizzards. Do you suppose that some have lost electricity? Come on back. I check the newsgroup every day. Bobbie R.
Response:
We are here, but it seems everyone is only reading and not posting these days. I bookmarked your site to get back to it when I have more time. We need another MCTD website out there as there are not many. From just scanning over it looks every extensive. Doris LindaRTC1 <lindar…@aol.comlindatc> wrote in message
news:20010318210924.07174.00001459@ng-mj1.aol.com… – Hide quoted text — Show quoted text -> I haven’t visited here in a long time. > I built a website about Mixed Connective Tissue Disorder..a form of SD. That > has kept me very busy. > Hope you all are well, > Linda > http://hometown.aol.com//lindartc/index.htm
Response:
Yep, I remember being able to pinch skin on my fingers. Mine’s a little more obnoxious and obvious ’cause I have contractures. Are your fingers swollen, or do they swell in the AM and PM? – Hide quoted text — Show quoted text -Judy Bay wrote in message <3AA6F290.EA63…@terraworld.net>… >It’s been very quiet since I joined about a month ago. I’ve just been >diagnosed with scleroderma (maybe). The RD thinks I should be able to >pull up a fold of skin on top of my fingers. I don’t remember ever being >able to do that, at least for many years. Anyone else?
Response:
I haven’t visited here in a long time. I built a website about Mixed Connective Tissue Disorder..a form of SD. That has kept me very busy. Hope you all are well, Linda http://hometown.aol.com//lindartc/index.htm
Response:
Yes, my fingers are swollen, sometimes more, sometimes less. That’s what sent me to the doctor in December. Prednisone has eased the swelling & pain considerably, but there’s a lot of stiffness. Mtx, kick in, please! – Hide quoted text — Show quoted text -Amelia Yaussy wrote: > Yep, I remember being able to pinch skin on my fingers. Mine’s a little > more obnoxious and obvious ’cause I have contractures. Are your fingers > swollen, or do they swell in the AM and PM? > Judy Bay wrote in message <3AA6F290.EA63…@terraworld.net>… > >It’s been very quiet since I joined about a month ago. I’ve just been > >diagnosed with scleroderma (maybe). The RD thinks I should be able to > >pull up a fold of skin on top of my fingers. I don’t remember ever being > >able to do that, at least for many years. Anyone else?
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