Scleroderma Information

A window into Paul Klee's final years

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Question:

On Wed, 21 Apr 2004 09:23:40 -0400, Nell <mildredskidnospam_at…@comcast.net> wrote: >And yet his paintings stayed bright. Many an artist would have felt >such gloom, the scleroderma being the shot that got him. But "While >artists’ skills often diminish as they age, Klee’s grew stronger. "In >a purely visual sense, he was still full of creativity" until the end >of his life, Rewald said" >He didn’t let the political or his physical circumstances stop him. >Nell

How well I can relate to that. While having CREST has done a number on my ability to play trumpet and fashion stained glass. One ability it can not tamper with is my ability to teach both these disciplines. It’s a matter of accepting and dealing with CREST and making do with what I have that helped to prevent my spirit from shattering. I loved being on the bandstand and I loved being able to cut glass for hours on end. But since I can’t do either for any great length of time I’ll be happy with what I can do and make up the shortfall by passing on my knowledge. That way, part of me will still exist thru my students learned skills. I recently saw an episode on MASH about a soldier whose hand was severely injured. Prior to the war, he was a concert pianist. Naturally, he was devastated by the apparent fact that his piano playing days are over. However, Dr. Charles Emerson Winchester convinced him otherwise when he obtained some piano works written to be played with only the left hand. While we never will know the soldier’s fate afterwards, the story did make a point. That point being that not all is never totally lost. Like they say, when God closes one door, He opens another. If you make the effort to seek it, you’ll find it. BOB – In GOD We Trust

Response:

"Hounded by the Nazis, Klee took refuge in 1933 in Bern, Switzerland. His works in German museums were confiscated, his livelihood disrupted and he was diagnosed in 1936 with incurable scleroderma, a chronic autoimmune disease." http://edition.cnn.com/2004/TRAVEL/DESTINATIONS/04/02/klee.exhibit.ap…

Response:

What a wonderful attitude. And I imagine it didn’t come about overnight. I haven’t seen that episode of MASH in years but I know the one you’re talking about. It’s one that’s not easy to forget. Thanks Nell On Wed, 21 Apr 2004 13:52:21 GMT, Robert DeSavage – Hide quoted text — Show quoted text -<beaglebob6…@comcast.ten> wrote: >On Wed, 21 Apr 2004 09:23:40 -0400, Nell ><mildredskidnospam_at…@comcast.net> wrote: >>And yet his paintings stayed bright. Many an artist would have felt >>such gloom, the scleroderma being the shot that got him. But "While >>artists’ skills often diminish as they age, Klee’s grew stronger. "In >>a purely visual sense, he was still full of creativity" until the end >>of his life, Rewald said" >>He didn’t let the political or his physical circumstances stop him. >>Nell >How well I can relate to that. While having CREST has done a number on >my ability to play trumpet and fashion stained glass. One ability it >can not tamper with is my ability to teach both these disciplines. >It’s a matter of accepting and dealing with CREST and making do with >what I have that helped to prevent my spirit from shattering. I loved >being on the bandstand and I loved being able to cut glass for hours >on end. But since I can’t do either for any great length of time I’ll >be happy with what I can do and make up the shortfall by passing on my >knowledge. That way, part of me will still exist thru my students >learned skills. >I recently saw an episode on MASH about a soldier whose hand was >severely injured. Prior to the war, he was a concert pianist. >Naturally, he was devastated by the apparent fact that his piano >playing days are over. However, Dr. Charles Emerson Winchester >convinced him otherwise when he obtained some piano works written to >be played with only the left hand. While we never will know the >soldier’s fate afterwards, the story did make a point. That point >being that not all is never totally lost. Like they say, when God >closes one door, He opens another. If you make the effort to seek it, >you’ll find it. >BOB >- >In GOD We Trust

Response:

There is a tendency in his older works to deal with harsher issues, like death and war, and to be of simpler construction, but who’s to say if it was from being ill, or just the direction his art took naturally with age and the political deterioration in Europe? I think what’s most amazing is that after diagnosis, there was a dip in productivity, and then he poured out the works more than ever before, despite what we know he had to be suffering, well before any Prilosec, calcium channel blockers, and NSAIDs. Dr Varga, Dr Dotz, and Caroline Keller have a great article from the SF "Scleroderma Voice" 2001, issue 4 that poses the likelihood that he suffered from pulmonary fibrosis and pulmonary hypertension because of information that he had shortness of breath and fatigue on even minor exertion. He apparently coudn’t let his body interfere with the things his art had to say! – Hide quoted text — Show quoted text -Nell wrote: >And yet his paintings stayed bright. Many an artist would have felt >such gloom, the scleroderma being the shot that got him. But "While >artists’ skills often diminish as they age, Klee’s grew stronger. "In >a purely visual sense, he was still full of creativity" until the end >of his life, Rewald said" >He didn’t let the political or his physical circumstances stop him. >Nell >On Thu, 15 Apr 2004 09:24:11 -0400, Amelia Yaussy ><am…@blackmule.com> wrote: >>"Hounded by the Nazis, Klee took refuge in 1933 in Bern, Switzerland. >>His works in German museums were confiscated, his livelihood disrupted >>and he was diagnosed in 1936 with incurable scleroderma, a chronic >>autoimmune disease." >>http://edition.cnn.com/2004/TRAVEL/DESTINATIONS/04/02/klee.exhibit.ap…

Response:

On Thu, 22 Apr 2004 18:30:55 -0400, Nell <mildredskidnospam_at…@comcast.net> wrote: >What a wonderful attitude. And I imagine it didn’t come about >overnight. >I haven’t seen that episode of MASH in years but I know the one you’re >talking about. It’s one that’s not easy to forget. >Thanks >Nell

It can be an emotional tug of war where it’s easy to be pulled to the negative side. I have days when I’m despondent where I think of myself being a ‘has been’. What pulls me back to the positive is the notion that it’s better to be a has been than a never been. – In GOD We Trust

Response:

And yet his paintings stayed bright. Many an artist would have felt such gloom, the scleroderma being the shot that got him. But "While artists’ skills often diminish as they age, Klee’s grew stronger. "In a purely visual sense, he was still full of creativity" until the end of his life, Rewald said" He didn’t let the political or his physical circumstances stop him. Nell On Thu, 15 Apr 2004 09:24:11 -0400, Amelia Yaussy – Hide quoted text — Show quoted text -<am…@blackmule.com> wrote: >"Hounded by the Nazis, Klee took refuge in 1933 in Bern, Switzerland. >His works in German museums were confiscated, his livelihood disrupted >and he was diagnosed in 1936 with incurable scleroderma, a chronic >autoimmune disease." >http://edition.cnn.com/2004/TRAVEL/DESTINATIONS/04/02/klee.exhibit.ap…

Response:

Fighting to live

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Question:

Granted, but a nurse’s visit isn’t a replacement for a doctor’s appointment. – Hide quoted text — Show quoted text -Robert DeSavage wrote: >On Thu, 15 Apr 2004 12:52:42 -0400, "metoo" <liy…@nac.net> wrote: >>What RUBBISH!! To count nurse’s visits the same as a visit to the dr.’s >>office!!! >>Shame on Medicaid! They really stink! >>jo >>nj >>"Amelia Yaussy" <am…@blackmule.com> wrote in message >>news:e5qdneaXF5z1EOPdRVn-uQ@wideopenwest.com… >>>"For Dorothy Graves, every day is a battle. For the past two years, the >>>Lady’s Island resident has fought the effects of scleroderma, a chronic >>>connective-tissue disease that has caused the hardening of her skin and >>>internal organs." >>>http://www.beaufortgazette.com/local_news/story/3501537p-3106165c.html >Perhaps a nurse as opposed to a doctor is a better deal. Not only to >Medicaid, but to the patient as well. >- >In GOD We Trust

Response:

A nurse practicioner would have been a slightly different story. At least then she would have had an almost doctor. Still wouldn’t take the place but still. . . . Poor woman. Nell On Fri, 16 Apr 2004 10:06:30 -0400, Amelia Yaussy – Hide quoted text — Show quoted text -<am…@blackmule.com> wrote: >Granted, but a nurse’s visit isn’t a replacement for a doctor’s appointment. >Robert DeSavage wrote: >>On Thu, 15 Apr 2004 12:52:42 -0400, "metoo" <liy…@nac.net> wrote: >>>What RUBBISH!! To count nurse’s visits the same as a visit to the dr.’s >>>office!!! >>>Shame on Medicaid! They really stink! >>>jo >>>nj >>>"Amelia Yaussy" <am…@blackmule.com> wrote in message >>>news:e5qdneaXF5z1EOPdRVn-uQ@wideopenwest.com… >>>>"For Dorothy Graves, every day is a battle. For the past two years, the >>>>Lady’s Island resident has fought the effects of scleroderma, a chronic >>>>connective-tissue disease that has caused the hardening of her skin and >>>>internal organs." >>>>http://www.beaufortgazette.com/local_news/story/3501537p-3106165c.html >>Perhaps a nurse as opposed to a doctor is a better deal. Not only to >>Medicaid, but to the patient as well. >>- >>In GOD We Trust

Response:

What RUBBISH!! To count nurse’s visits the same as a visit to the dr.’s office!!! Shame on Medicaid! They really stink! jo nj "Amelia Yaussy" <am…@blackmule.com> wrote in message

news:e5qdneaXF5z1EOPdRVn-uQ@wideopenwest.com… – Hide quoted text — Show quoted text -> "For Dorothy Graves, every day is a battle. For the past two years, the > Lady’s Island resident has fought the effects of scleroderma, a chronic > connective-tissue disease that has caused the hardening of her skin and > internal organs." > http://www.beaufortgazette.com/local_news/story/3501537p-3106165c.html

Response:

"For Dorothy Graves, every day is a battle. For the past two years, the Lady’s Island resident has fought the effects of scleroderma, a chronic connective-tissue disease that has caused the hardening of her skin and internal organs." http://www.beaufortgazette.com/local_news/story/3501537p-3106165c.html

Response:

On Thu, 15 Apr 2004 12:52:42 -0400, "metoo" <liy…@nac.net> wrote: >What RUBBISH!! To count nurse’s visits the same as a visit to the dr.’s >office!!! >Shame on Medicaid! They really stink! >jo >nj >"Amelia Yaussy" <am…@blackmule.com> wrote in message >news:e5qdneaXF5z1EOPdRVn-uQ@wideopenwest.com… >> "For Dorothy Graves, every day is a battle. For the past two years, the >> Lady’s Island resident has fought the effects of scleroderma, a chronic >> connective-tissue disease that has caused the hardening of her skin and >> internal organs." >> http://www.beaufortgazette.com/local_news/story/3501537p-3106165c.html

Perhaps a nurse as opposed to a doctor is a better deal. Not only to Medicaid, but to the patient as well. – In GOD We Trust

Response:

Break in Raynauds Research

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Question:

This is really interesting and relevant. I have one swollen, throbbing finger that sounds like it could be helped by this treatment. My next appointment with my Rheumy is in November, I am going to see if she has heard of this Research. Thank you, Sherry. Susan – Hide quoted text — Show quoted text -McStyx wrote: > >Subject: Break in Raynauds Research > >From: surviv…@aol.com (Sherry Messick) > >After studying 15 people with scleroderma, Dr. Freedman’s research team > >confirmed that Raynaud’s episodes could be blocked (when physiologically > >provoked in a laboratory setting) by administering L-arginine or sodium > >nitroprusside, both of which are involved in NO production. > I have been taking L-arginine since April upon the recommendation of the doctor > who did some sympathetic nerve blocks to get blood flowing to my feet. On me, > Raynaud’s aggressively attacks my feet and only mildly affects my hands. The > nerve blocks got me walking again and eventually even the ulcers healed. I have > continued to progress and do not know how much is attributable to the long term > effects of the treatment or to L-arginine. Anyway, I am sold on the stuff. My > toes suffer far fewer purple episodes than ever before. > I showed this article to my rheumatologist and he asked me to see if I could > find the abstract for him. I did a cursory search of the Internet to see what I > could find and came up with nothing. This is not surprising, I am no ace at > this searching business. Since my next appointment is several months off, I > have done something I am much more proficient at, I have procrastinated. > Would some of you Internet whizzes out there please help me find the abstract? > All help will be appreciated. > BTW, L-arginine is a product found in most health food stores. I take 1000 mg a > day. > Thanks, > Peggy

Response:

WOW! Thanks so much, Sherry, for posting this. I will definitely ask my doc about it. Fall/Winter/early Spring is no picnic in Cleveland with Raynaud’s, but this really sounds encouraging. Thanks again! Tracy "if you’re on thin ice you may as well dance…"

Response:

You are welcome Tracy. Yes I can relate to your comments about winters not being fun. I just dread to see them coming. I am so bound to the house in the winter. In the summer at least I can go outside and sit and enjoy the breeze russling in the trees or the birds eating from our bird feeder or just to feel the sun on my face. In the winter I just see the world from a window. Whether that window is from my home or car it is how I see the world during those months. Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey

Response:

Peggy how are you doing? Have you gotten any more e-mail from the son who had the mother in Ocean Springs Mississippi? My fingers arent working so great tonight so sorry if I make any type-os. I am trying my best, plus this "illegal fuction" sign keeps popping up for reasons I dont understand. Please call me 334/955-6500 so we can get together next week, please. Colleen – Hide quoted text — Show quoted text -Sir Lafsalot wrote: > mPeggy, > When I saw that I was laughing so hard! Yeah, she’s a whiz, all right! > <still LOL snicker snort!> > — > "Barefootin’, rootin’ tootin’ Jessie Jaimes: Soodoh-intelekchule Queen > of d’Nile…" > — > McStyx wrote: > > Amie, > > Thanks for the "whiz" work. That is just what I needed. > > Peggy

Response:

Amie, Thanks for the "whiz" work. That is just what I needed. Peggy

Response:

Peggy, When I saw that I was laughing so hard! Yeah, she’s a whiz, all right! <still LOL snicker snort!> — "Barefootin’, rootin’ tootin’ Jessie Jaimes: Soodoh-intelekchule Queen of d’Nile…" — – Hide quoted text — Show quoted text -McStyx wrote: > Amie, > Thanks for the "whiz" work. That is just what I needed. > Peggy

Response:

>Sherry I have been thinking all of this time that you saw life through your >computer monitor, LOL.

LOL I hadn’t thought of that. LOL. Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey

Response:

Sherry I have been thinking all of this time that you saw life through your computer monitor, LOL. Smiles Apple Annie ***To reply remove "nospam" from my address*** My favorite scleroderma and arthritis sites are…. http://sclerodermasupport.com http://ihavescleroderma.com http://www.toad.net/~dreichard/ http://arthritisnet.com

Response:

McStyx wrote in message <19991026145536.14506.00001…@ng-cr1.aol.com>… >Would some of you Internet whizzes out there please help me find the

abstract? I took a whiz on the internet and found this summary: Lancet 1999 Aug 28;354(9180):739 Acute effect of nitric oxide on Raynaud’s phenomenon in scleroderma. Freedman RR, Girgis R, Mayes MD Intra-arterial infusions of L-arginine and sodium nitroprusside significantly decreased the occurrence of laboratory-induced Raynaud’s phenomenon in scleroderma patients. Raising the concentration of nitric oxide may be of therapeutic value in this population. Publication Types: Clinical trial Letter Randomized controlled trial PMID: 10475187, UI: 99402172 Online the full report can be ordered from Medline at PubMed http://www.ncbi.nlm.nih.gov/PubMed/ or I’m sure your doc knows how to get ahold of it from this info. Note, this says INFUSION of l-arginine, not pills.

Response:

>Subject: Break in Raynauds Research >From: surviv…@aol.com (Sherry Messick) >After studying 15 people with scleroderma, Dr. Freedman’s research team >confirmed that Raynaud’s episodes could be blocked (when physiologically >provoked in a laboratory setting) by administering L-arginine or sodium >nitroprusside, both of which are involved in NO production.

I have been taking L-arginine since April upon the recommendation of the doctor who did some sympathetic nerve blocks to get blood flowing to my feet. On me, Raynaud’s aggressively attacks my feet and only mildly affects my hands. The nerve blocks got me walking again and eventually even the ulcers healed. I have continued to progress and do not know how much is attributable to the long term effects of the treatment or to L-arginine. Anyway, I am sold on the stuff. My toes suffer far fewer purple episodes than ever before. I showed this article to my rheumatologist and he asked me to see if I could find the abstract for him. I did a cursory search of the Internet to see what I could find and came up with nothing. This is not surprising, I am no ace at this searching business. Since my next appointment is several months off, I have done something I am much more proficient at, I have procrastinated. Would some of you Internet whizzes out there please help me find the abstract? All help will be appreciated. BTW, L-arginine is a product found in most health food stores. I take 1000 mg a day. Thanks, Peggy

Response:

Good Luck Susan. Keep us posted on what you find out. Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey

Response:

Wayne State University Researcher Reports: Nitric Oxide Blocks Raynaud’s Incidents in Scleroderma Patients DETROIT, Aug. 30 /PRNewswire/ — The tingling and pain associated with Raynaud’s syndrome (the condition that causes interrupted blood supply to the fingers and toes) can be blocked by increasing the concentration of nitric oxide in the blood. This finding is reported by Wayne State University’s Dr. Robert Freedman in the August 28 issue of The Lancet. Robert Freedman, PhD, professor of psychiatry and behavioral neurosciences at the Wayne State University (WSU) School of Medicine, tested his suspicion that the nitric oxide (NO) pathway was involved in Raynaud’s attacks suffered by patients with scleroderma. Scleroderma, a disease of the immune system, causes the skin on the hands and feet to "harden" or become tight and stiff due to an overgrowth of collagen. Most patients with scleroderma also experience episodes of Raynaud’s, which temporarily stops circulation and causes severe redness, burning, and possible permanent tissue damage. After studying 15 people with scleroderma, Dr. Freedman’s research team confirmed that Raynaud’s episodes could be blocked (when physiologically provoked in a laboratory setting) by administering L-arginine or sodium nitroprusside, both of which are involved in NO production. "These findings suggest that elevated levels of nitric oxide may have therapeutic value against episodes of Raynaud’s," said Dr. Freedman. Co-authors on the study are Dr. Reda Girgis, assistant professor of internal medicine, and Dr. Maureen Mayes, WSU professor and director of the Scleroderma Research and Treatment Unit. This research team has been conducting nationally-funded research on Raynaud’s disease for decades. In the early 1990s, they developed a procedure that helps Raynaud’s sufferers use biofeedback to reduce the frequency of painful symptoms by as much as 92 percent. "In the past, there was no drug available to target the peripheral blood vessels involved in Raynaud’s," said Dr. Freedman. "We have long suspected that the vascular endothelial function was impaired; but it wasn’t until recently that we introduced nitric oxide as an intervening agent. Now, we can offer NO as a therapeutic benefit for patients who suffer from progressive Raynaud’s syndrome." Patients are currently being recruited for related research studies. For more information, please call Wayne State University’s behavioral medicine laboratory at 313-577-7510 or 313-577-0313. The Wayne State University School of Medicine is Detroit’s only medical school and it is the largest single-campus medical school in the country. SOURCE Wayne State University – School of Medicine CO: Wayne State University – School of Medicine ST: Michigan IN: MTC EDU SU: 08/30/99 11:32 EDT http://www.prnewswire.com Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey

Response:

white toe

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Question:

When you have a raynauds attack and the digit stays in the white stage no matter what you do to warm it what do you do? My middle toe on my left foot is white and hasn’t warmed up all day. It is hurting now. Smiles Apple Annie ***To reply remove "nospam" from my address*** My favorite scleroderma and arthritis sites are…. http://sclerodermasupport.com http://ihavescleroderma.com http://www.toad.net/~dreichard/ http://arthritisnet.com

Response:

Annie, if it stays in that stage you will want to call your physician. That is the dangerous stage. You can warm it up perhaps by placing your foot in warm water. Be sure to check the temperature of the water before sticking your numb foot in there. You can get serious burns that way. If this doesn’t work you might want to try using warm heated dry towels or disposable warmers on it for an extended period of time. Keep a sock on it, maybe two pairs. Please, please, please if it stays white call your doctor immediately. Sherry Messick Visit Surviving Scleroderma http://SclerodermaSupport.com The Scleroderma & Autoimmune Digest Email Support List (Subscribe Today) http://SclerodermaSupport.com/digest "We are all Beacons of Light for each other" Oprah Winfrey

Response:

On 06 Oct 1999 20:10:38 GMT, applespi…@aol.comnospam (Apple Annie) wrote: >When you have a raynauds attack and the digit stays in the white stage no >matter what you do to warm it what do you do? My middle toe on my left foot is >white and hasn’t warmed up all day. It is hurting now.

Have you tried running a blow dryer on it? Just wave it back and forth over the toe so it doesn’t get too hot. I did this a thousand times on my finger tips when I was delivering mail. It really is a quick blast for a quick thaw especially in winter weather. Bob – alle…@tiac.net ICQ 6418621

Response:

SF Conference

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Question:

I have read a little about a conference coming up. Is this on sclerodarma or something else? Will there be a lot of people there with the disease or is this a medical conference for physicians?

Response:

The Bluebonnet chapter of the scleroderma foundation are this years host for the conference in Houston. The webmasters of their chapter page Linda and Joe Pecot have created a fabulous page with about everything you could imagine in relation to planning your travels all the way up to what to expect when you get there. A great resource page if you are planning on attending the SF conference in Houston Texas July 30 thru August 1 http://cust2.iamerica.net/jpecot/1998Conference.htm

Response:

Anybody here already got their reservations in? — Amie ——– Kate Nance’s "I Have Scleroderma" website has been updated and moved to http://members.tripod.com/~ayaussy Please visit us!

Response:

In article <35448FBA.7…@dbsx.com>, ayau…@dbsx.com wrote: > Anybody here already got their reservations in? > — > Amie > ——– > Kate Nance’s "I Have Scleroderma" website has > been updated and moved to > http://members.tripod.com/~ayaussy > Please visit us!

I called in my hotel reservations a month ago and I am getting ready to call national with mine and Joe’s conference reservations. We decided we would only stay at the hotel on Friday and Saturday as the hotel is only about 20 miles from our house and we can drive in on Thursday and Friday mornings. Linda —–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/ Now offering spam-free web-based newsreading

Response:

looking for anyone treated by Kelation

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Question:

I am writing for a co-worker with scleroderma, she is looking for anyone that has had Kelation (check spelling) treatments for scleroderma. Our extended health carrier will help cover costs for treatment if she can find proof Kelation works. She would appreciate any help or forwarding to someone that may have info. please contact jerls…@pacificcoast.com Thank you for your help K Bevan

Response:

I did know someone that had taken this therapy and felt it had helped her but I can’t remember who it was. I will search my archives and see if I can find the name and I will give him/her your email address. Keith Bevan wrote: > I am writing for a co-worker with scleroderma, she is looking for anyone > that has had Kelation (check spelling) treatments for scleroderma. Our > extended health carrier will help cover costs for treatment if she can find > proof Kelation works. > She would appreciate any help or forwarding to someone that may have info. > please contact jerls…@pacificcoast.com Thank you for your help > K Bevan

– *** Love, Hugs and well wishes From *** Sherry Messick, Surviving Scleroderma http://SclerodermaSupport.com "We are all Beacons Of Light for Each Other" Oprah Winfrey

Response:

Hi Kevin: The correct speling is chelation and although I don’t know anyone who has had it, Cuprimine(D-Penicillamine) is a chelating agent. I am sure there are many people who use that Tried it myself for a few months. I have a friend in California who has used DMSO which was also used a chelating agent. Sorry I can’t provide more help….Gigi

Response:

Kevin: For info, you could go to www.rheumatic.org and subscribe to their newsgroup (it is an email style one, and quite copious!!). There were a couple of people there doing chelation therapy in November. If you don’t want to join the newsgroup, you might also send an email to them at supp…@rheumatic.org and ask any responders to email you directly. AC – Hide quoted text — Show quoted text -GRamos3414 wrote in message <19990105100214.10923.00005…@ng33.aol.com>… >Hi Kevin: >The correct spelling is chelation and although I don’t know anyone who has had >it, Cuprimine(D-Penicillamine) is a chelating agent. I am sure there are many >people who use that Tried it myself for a few months. I have a friend in >California who has used DMSO which was also used a chelating agent. Sorry I >can’t provide more help….Gigi

Response:

Thanks

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Question:

> Thank you for my warm welcome!

The operable word here is warm! Most of us have raynauds so we work hard to keep it warm in this newsgroup. I am most pleased you felt the warmth of support present here. I hope you visit often. BTW we are not just good talkers we are good listeners also. Feel free to comment or ask questions whenever you wish. Take care. — Love and Hugs From Sherry Messick Surviving Scleroderma http://www.SclerodermaSupport.com "Get Up, Stand Up and Fight to survive because Scleroderma Kicks you when you are down" "We are all Beacons Of Light for Each Other " Oprah Winfrey Tomorrow is promised to no one. Learn to say ‘I love you’…. Any way you can! / ____/_________ //////\\\ Have a Bewitching Halloween!! /// Q Q \ /// U \ // ___/ \

Response:

Thank you for my warm welcome! ~Mary~

Response:

Original Scleroderma Foundation

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Question:

LOL, Email address wanabeprez and signed it Gonnabe Prez. I am rolling on the floor laughing my head off.

Response:

Hey Sharon: Hello there I think you an me oughta trade names. Been watching you this header was worth your one to them 30. Whats stopping you from polotics. You make one liners and the rest they just gobble it up. Was lookig for fibro but this grps worth a barral of monkies. See ya tomorrow GonnaBe Prez

Response:

LOL

Response:

WanabePrez wrote in message

<1998041600270100.UAA18…@ladder03.news.aol.com>… >Hey Sharon: >Hello there I think you an me oughta trade names. Been watching you this >header was worth your one to them 30. Whats stopping you from polotics. You >make one liners and the rest they just gobble it up. Was lookig for fibro but >this grps worth a barral of monkies. See ya tomorrow > GonnaBe Prez

I suggest that you continue on to where it was you were heading. Your message was a wake up call to me. If the issues that I am disputing are attracting a post such as yours I guess it may be time to drop off and settle things another way. Do you have scleroderma?. I see you have AOL why don’t you visit the Better Health Network. You can meet and greet the same group minus myself on their message board. They followed me from there. In fact you would be doing me a favor. Them too, they are online all day. Have fun. Sharon

Response:

Sharon. I have visited both the newsgroup as well as the AOL message board since I have been online. I didn’t use to post often so I thank you for bringing me out of my shell in that regard. I responded to you on AOL and when you began posting here I responded here as well. No one followed you anywhere. I have always visited both areas and will continue to do so in the future. Keep in mind that what you have managed to do here in this group will not be allowed on the AOL board since we have HRSKath monitoring the board. She put an end to it the last time and you came here. If you return there and begin posting the same type of messages she will put an end to it again. Why don’t you do as Amie requested and just stop the bickering and I won’t have any need to respond to you?

Response:

Silicone mammary implants and connective tissue disease.

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Question:

Title: Silicone mammary implants and connective tissue disease. Title Abreviation: Scand J Plast Reconstr Surg Hand Surg Date of Pub: 1993 Dec Author: Elberg JJ; Kjoller KH; Krag C; Issue/Part/Supplement: 4 Volume Issue: 27 Pagination: 243-8 MESH Headings: Adult; Connective Tissue Diseases (*ET); Female; Human; Implants, Artificial (*AE); Mammaplasty (*); Middle Age; Raynaud’s Disease (ET); Scleroderma, Systemic (ET); Silicones (*AE); Synovitis (ET); -RN-; Journal Title Code: UDN Publication Type: JOURNAL ARTICLE Date of Entry: 940516N Entry Month: 9407 Country: SWEDEN Index Priority: 2 Language: Eng Unique Identifier: 94212088 Unique Identifier: 94212088 ISSN: 0284-4311 Abstract: The American Food and Drug Administration recently restricted the use of silicone gel-filled mammary implants for breast augmentations and reconstructions because a number of case reports had suggested that there was an association between silicone and connective tissue disease. We have found 36 such case reports published since 1982. Systemic sclerosis is the most common reported diagnosis (n = 15). Implants were removed from 15 patients, in nine of whom symptoms improved. The mechanism behind the postulated relationship is obscure, and most authors focused on an auto-immune-like response to silicone, which acts directly as a hapten or as an adjuvant. We found no conclusive evidence to implicate silicone mammary implants in connective tissue diseases. We do, however, recommend removal of implants from patients with severe connective tissue diseases. Patients with symptoms or active connective tissue disease should not be considered for silicone implants. Address: Department of Plastic Surgery, Copenhagen University Hospital, Herlev, Denmark. Number of References: 32

Response:

We found no conclusive evidence to implicate silicone mammary implants in connective tissue diseases. We do, however, recommend removal of implants from patients with severe connective tissue diseases.

Sounds like a paper written by a committee. The second statement does not follow from the first and in fact appears to repudiate it. Ed Ed Uthman, MD <http://www.neosoft.com/~uthman/ corpore servit." Pathologist -Seneca Houston/Richmond, Texas, USA

Response:

Title: Silicone mammary implants and connective tissue disease. Title Abreviation: Scand J Plast Reconstr Surg Hand Surg Date of Pub: 1993 Dec Author: Elberg JJ; Kjoller KH; Krag C; Issue/Part/Supplement: 4 Volume Issue: 27 Pagination: 243-8 MESH Headings: Adult; Connective Tissue Diseases (*ET); Female; Human; Implants, Artificial (*AE); Mammaplasty (*); Middle Age; Raynaud’s Disease (ET); Scleroderma, Systemic (ET); Silicones (*AE); Synovitis (ET); -RN-; Journal Title Code: UDN Publication Type: JOURNAL ARTICLE Date of Entry: 940516N Entry Month: 9407 Country: SWEDEN Index Priority: 2 Language: Eng Unique Identifier: 94212088 Unique Identifier: 94212088 ISSN: 0284-4311 Abstract: The American Food and Drug Administration recently restricted the use of silicone gel-filled mammary implants for breast augmentations and reconstructions because a number of case reports had suggested that there was an association between silicone and connective tissue disease. We have found 36 such case reports published since 1982. Systemic sclerosis is the most common reported diagnosis (n = 15). Implants were removed from 15 patients, in nine of whom symptoms improved. The mechanism behind the postulated relationship is obscure, and most authors focused on an auto-immune-like response to silicone, which acts directly as a hapten or as an adjuvant. We found no conclusive evidence to implicate silicone mammary implants in connective tissue diseases. We do, however, recommend removal of implants from patients with severe connective tissue diseases. Patients with symptoms or active connective tissue disease should not be considered for silicone implants. Address: Department of Plastic Surgery, Copenhagen University Hospital, Herlev, Denmark. Number of References: 32

Response:

scleraderma

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Question:

I would like info on this disease. My sis-in-law diag. this past week. Rhematologist feels from lab-wk she is in early stages. I want to find info from medical sources or from others who have this disease, in order to help her learn to cope. Thanks for any help I can get from www. Patty/Fla.

Response:

I would like info on this disease. My sis-in-law diag. this past week. Rhematologist feels from lab-wk she is in early stages. I want to find info from medical sources or from others who have this disease, in order to help her learn to cope. Thanks for any help I can get from www.

Patty, This generally belongs in the arthritis newsgroups. The FAQ is maintained he has been frequently updating it. Suggest contacting him for a copy and checking out both alt.support.arthritis and misc.health.arthritis. Don.